Jamie Cohen

Jamie holds a B.S. in accounting from Rutgers University and is a licensed certified public accountant. She has 7 years of experience in public accounting and over 10 years experience in nonprofit accounting. She currently serves as the accountant and Program Director for Dravet Syndrome Foundation. When not working, she enjoys volunteering her time, running, and being with her family. She and her husband Jason have three children, including a daughter who has a SCN1A-related seizure disorder.

Jamie Cohen Dravet Syndrome Foundation Finance and Program Director
Seizure action plan awareness week

SAP Awareness Week

Do you have a Seizure Action Plan? A seizure is a medical emergency. A Seizure Action Plan (SAP) incorporates tailored guidelines on how to respond during a seizure. It includes patient-specific information that can assure quick and appropriate intervention. For patients with Dravet syndrome, a SAP is an important management tool. Its development should involve […]

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researchers looking at computer screen

Join the EL-PFDD Meeting

Particpate in the EL-PFDD on Dravet Syndrome Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome EL-PFDD meetings bring together patients and caregivers, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. DSF will be hosting a virtual EL-PFDD on Dravet syndrome on February 3,

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Scott Baraban PhD DSF Advisory Board

Researcher Spotlight

Meet Scott Baraban, PhD In this Researcher Spotlight meet DSF’s Scientific Advisory Board (MAB) member, Scott Baraban, PhD. Dr. Baraban studies Dravet syndrome using zebrafish, and his laboratory’s work has led to advancements in drug discovery and repurposing for Dravet syndrome. DSF funded Dr. Baraban’s zebrafish drug screens through our grants program in 2011, and currently, some

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Elaine Wirrell, MD Mayo Clinic DSF Advisory Board

Researcher Spotlight

Meet Elaine Wirrell, MD In this Researcher Spotlight meet DSF’s Medical Advisory Board (MAB) member, Elaine Wirrell, MD. Dr. Wirrell is passionate about improving the lives of children with epilepsy, appreciating the tremendous impact this condition has on the entire family, and the critical importance of addressing seizures and comorbidities. Last month, Dr. Wirrell was

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DSF Research Roundtable Event

Research Roundtable

12th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 12th annual Research Roundtable on December 2nd, 2021, the evening prior to the annual American Epilepsy Society (AES) Meeting. Following the 2020 virtual-only event, it felt electric to be gathered together in person to discuss advances in Dravet syndrome research. This annual

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