Medical Advisory Board

DSF’s Medical Advisory Board (MAB) is comprised of recognized authorities in the clinical treatment of Dravet syndrome. Their role is to provide strategic advice and counsel to support the mission of DSF. The MAB offers input on clinical trials that impact the Dravet community; serve as a representative link between DSF and the medical community; and update the best practices for the International Dravet Syndrome Treatment Consensus.

Linda Laux, MD

Ann & Robert H. Lurie Children's Hospital

Kelly Knupp, MD, MSCS

Children's Hospital Colorado

Sookyong Koh, MD, PhD

University of Nebraska

M. Scott Perry, MD

Cook Children's Medical Center

Joseph Sullivan, MD

University of California San Francisco

Scientific Advisory Board

DSF’s Scientific Advisory Board (SAB) oversees the organization’s research activities. They review and approve all research grant applications and meet annually with other interested researchers and scientists to discuss innovative and promising research in the field of Dravet syndrome and associated epilepsies at DSF’s Research Roundtable.

Jack Parent, MD

Board Co-Chair University of Michigan Medical Center

Lori Isom, PhD

Board Co-Chair University of Michigan Medical Center

Scott Baraban, PhD

University of California San Francisco

Dennis Dlugos, MD, MSCE

Children's Hospital of Philadelphia

Ethan Goldberg, MD, PhD

Children's Hospital of Philadelphia

Jennifer Kearney, PhD

Northwestern University

Heather C. Mefford, MD, PhD

St. Jude's Research Hospital

Miriam Meisler, PhD

University of Michigan Medical Center

Sarah Weckhuysen, MD, PhD

University of Antwerp in Belgium

Gaia Colasante, PhD

IRCCS Ospendale San Raffaele

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