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Epilepsy Alliance America

Epilepsy Alliance America, founded in 2018, is a growing national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the
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Epilepsy Leadership Council Member

The Epilepsy Leadership Council (ELC) is made up of individuals representing organizations serving individuals with epilepsy and their families, as well as professionals, and governmental
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Epilepsy Learning Healthcare System

By connecting epilepsy centers with each other and with community service providers, and including people with epilepsy and their families, the Epilepsy Learning Healthcare System
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EveryLife Foundation

The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven
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Global Genes – Global Advocacy Alliance Partner

Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. They envision a
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NASN – Coordinated Support System for Students with Epilepsy (CSSSE) Advisory Group

As a CSSSE Advisory Group member, DSF will make key contributions to the project, including: Review of Needs Assessment results (Navigator and participating school nurses)
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NeurologyLive Partner – Strategic Alliance Partnership

NeurologyLive®, is a multimedia platform dedicated to providing health care professionals with direct access to expert-driven, practice-changing news and insights in neurology. DSF is a
Collaborators P2P

Parent to Parent – Alliance Member

The mission of Parent to Parent is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families
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Rare Epilepsy Network Partner

The mission of Rare Epilepsy Network (REN) is to work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused
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Seizure Action Plan Coalition

The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance.  The organizations knew there was an opportunity
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