American Brain Coalition
The American Brain Coalition (ABC) is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, ...
Center for Innovation & Value Research
The Center for Innovation & Value Research is an independent nonprofit research organization working to make sure that all patients have access to the right ...
Epilepsy Alliance America
Epilepsy Alliance America, founded in 2018, is a growing national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the ...
Epilepsy Leadership Council Member
The Epilepsy Leadership Council (ELC) is made up of individuals representing organizations serving individuals with epilepsy and their families, as well as professionals, and governmental ...
Epilepsy Learning Healthcare System
By connecting epilepsy centers with each other and with community service providers, and including people with epilepsy and their families, the Epilepsy Learning Healthcare System ...
EveryLife Foundation
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven ...
Global Genes – Global Advocacy Alliance Partner
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. They envision a ...
Mason’s Movement Foundation
Mason’s Movement Foundation is a 501(c)3 non-profit, established in 2020 by Matt and Amanda Langford in loving memory of their son, Mason Langford. Their foundation supports ...
NASN – Coordinated Support System for Students with Epilepsy (CSSSE) Advisory Group
As a CSSSE Advisory Group member, DSF will make key contributions to the project, including: Review of Needs Assessment results (Navigator and participating school nurses) ...
NeurologyLive Partner – Strategic Alliance Partnership
NeurologyLive®, is a multimedia platform dedicated to providing health care professionals with direct access to expert-driven, practice-changing news and insights in neurology. DSF is a ...
Parent to Parent – Alliance Member
The mission of Parent to Parent is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families ...
Rare Epilepsy Network Partner
The mission of Rare Epilepsy Network (REN) is to work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused ...
