What is Dravet Syndrome?

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700. [1]

$ 9.1 M+

Community. Research. Progress.

Raising Hope & Changing Lives through Research

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.

We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together. Thanks to our community’s combined efforts, DSF has many accomplishments to be proud of. Join #TeamDSF by making a donation, starting a personal fundraising campaign, or setting up a social media fundraiser this year.

We're Here To Help You

We offer a wide variety of resources for caregivers and medical professionals

DSF offers many resources for parents and caregivers including brochures, educational webinars, a biennial conference and videos. We also offer support groups and programs for families and siblings and patient and caregiver connect grants.

DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy.

DSF offers many resources and educational materials for neurologists serving our Dravet community including a biennial conference, diagnostic considerations, information on new FDA-approved medications, and seizure rescue action plans.

DSF Recent News & Information

Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review on our news page

How is Cora doing? A mom’s musing on what that question is really asking.

“How is Cora doing?” is a typical question we get after our 4 year old daughter has had a seizure. It is a socially acceptable ...
Read More →

2024 DSF Conference Recap

The 2024 DSF Family & Professional Conference took place June 20th to 22nd at the JW Marriott Minneapolis Mall of America in Minnesota. The meeting ...
Read More →

Fundraising Handbooks

Whether you opt to organize a gala, arrange a fundraising walk, initiate a social media fundraiser, or engage in a virtual event, you play a ...
Read More →
Scroll to Top
Skip to content