What is Dravet Syndrome?

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700. [1]

Community. Research. Progress.

Raising Hope & Changing Lives through Research

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.

We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together.

Thanks to the collective efforts of our community, DSF has achieved numerous milestones to celebrate. Become a part of #TeamDSF by donating, launching a personal fundraising campaign, or exploring other ways to give.

DSF Recent News & Information

Keep up to date on current information that is important to you in our weekly Decoding Dravet Blog posts and through our email updates.  

Longitudinal Insights: Gathering Natural History Data for Dravet Syndrome

DSF recently announced funding for a Longitudinal Dravet Syndrome Natural History Study led by Dr. Kelly Knupp with The Dravet Lifespan Multidisciplinary Clinic at Children’s ...
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Introducing a New Support Space for Dads Navigating Dravet Syndrome

When your child is first diagnosed with Dravet syndrome, everything changes, instantly and profoundly. Life as you knew it shifts. Suddenly, your days are filled ...
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That’s a Wrap on the 2025 Day of Dravet Workshops!

DSF’s 2025 Day of Dravet regional workshops provided the opportunity for patient families to come together to learn, connect, and feel supported. While many of ...
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