Patient Care
Finding the best care for a rare disease such as Dravet syndrome can be challenging, but with the right strategies, patient families can access the expertise and support they need.
Be sure to use our tools and resources below to help you feel confident in the healthcare decisions you make for your loved ones. If you are interested in best care practices and treatment options, visit our Diagnosis and Treatment page.

Find a Doctor
Find a Doctor
Our Find a Doctor tool helps you locate professionals experienced in treating patients with Dravet syndrome and related ion channelopathies. Many of these professionals have been recommended by the families of their patients.

Comprehensive Care Centers
Individuals with Dravet syndrome have complex and lifelong neurological and medical needs that are unique. A visit to a Comprehensive Care Center will benefit the patient and family, allowing them to connect with knowledgeable experts and form a bridge to their local care provider when complex issues arise.

Surgery in Patients with DS
Preparing for surgery can be a time fraught with worry, and anxieties can be compounded when your loved one already has underlying health concerns. DSF has compiled some tips, resources, and considerations to help you feel more prepared if your loved one with Dravet syndrome needs to have a surgical procedure.