Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
Our Patient Assistance Grants Are Here to Help Your Family!
Our Patient Assistance Grant program (also known as PAG) has been a part of our advocacy efforts at DSF since 2009. We recognize how difficult ...
NINDS 75th Anniversary
In 2025, the National Institute of Neurological Disorders and Stroke (NINDS) marks its 75th anniversary, celebrating a legacy that began in 1950. This milestone underscores ...
From Discovery to Delivery: How Science and Policy Are Shaping a New Era for Gene Therapy
Scientific advances in gene and cell therapy are moving fast. CRISPR-based therapies are being developed in record time to help children with life-threatening conditions. At ...
Why Can One Child Get a Groundbreaking Treatment – But Not Thousands Like Mine?
A recent medical breakthrough resulted in the successful treatment of a child with a rare genetic disorder with a personalized CRISPR gene editing therapy developed ...
From Heartbreak to Hope: A Family’s Mission to Catch a Cure for Dravet Syndrome
I never imagined I’d become the parent of a child with a rare disease. I never pictured a life built around emergency medications, seizures, feeding ...
Bentley’s Story: A Bright Light Through the Darkness of Dravet
As Dravet Remembrance Day approaches on June 15th, we’d like to share a heartfelt blog post written by Blake Fish about her son, Bentley. Bentley ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!
