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Longitudinal Insights: Gathering Natural History Data for Dravet Syndrome
DSF recently announced funding for a Longitudinal Dravet Syndrome Natural History Study led by Dr. Kelly Knupp with The Dravet Lifespan Multidisciplinary Clinic at Children’s ...
Introducing a New Support Space for Dads Navigating Dravet Syndrome
When your child is first diagnosed with Dravet syndrome, everything changes, instantly and profoundly. Life as you knew it shifts. Suddenly, your days are filled ...
That’s a Wrap on the 2025 Day of Dravet Workshops!
DSF’s 2025 Day of Dravet regional workshops provided the opportunity for patient families to come together to learn, connect, and feel supported. While many of ...
Grief and Bereavement: Resources and Support from DSF
Grief is a complicated, heavy, and big emotion. And it is never so heavy as when someone we love dies. Especially when that death is ...
Why the Work of DSF Matters
When a parent first hears the words “Dravet syndrome,” their world shifts. Suddenly, they’re navigating a life marked by uncertainty – one filled with overwhelming ...
Patient Equity and Inclusion Committee
Starting out as the Health Equity Coordinator for the Dravet Syndrome Foundation (DSF), I knew I wanted DSF to be a place where everyone belongs ...
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