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Help Us Raise Awareness: Become a DSF Brand Ambassador!
The Dravet Syndrome Foundation (DSF) is excited to open applications for the 2025/2026 Brand Ambassador Program! From May 1 to May 15, individuals from around ...
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Backing Breakthroughs: DSF Fuels Continued Gene Therapy Innovation at Allen Institute
A recent publication in the journal of Science Translational Medicine revealed a groundbreaking new approach to a genetic therapy for Dravet syndrome. The new scientific ...
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Researchers, scientists, and other experts must be allowed to continue their life-saving work for Dravet syndrome and other rare diseases
Around 1 in 5 children with my 6-year-old’s rare form of epilepsy die in childhood. I am regularly reminded of this reality when other caretakers in ...
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Supporting Dravet Syndrome Awareness: Join Our Annual T-Shirt Fundraiser
As we gear up for June and Dravet Syndrome Awareness Month, we are excited to announce our annual T-shirt fundraiser! Every year, supporters rally together ...
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The Genetics of Dravet Syndrome
For nearly 25 years now we have known that mutations in the sodium channel gene, SCN1A, can lead Dravet syndrome and related epilepsies. Since the ...
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Discovery in Fish Leads to a Clinical Trial for Dravet syndrome
Currently, the ARGUS Trial is enrolling participants with Dravet syndrome to evaluate if Clemizole (EPX-100) can reduce the number of seizures. Clemizole has a long ...
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