Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
Why We’re Asking for Your Support This Year—Because Families Can’t Wait
When Dravet Syndrome Foundation (DSF) began in 2009, it started with four parents and a bold vision: advance understanding of a little-known disease, create treatments ...
Reigniting Passion After Stagnation
Whether you’re new to the Dravet community or have walked this journey for years, chances are you’ve faced a season of stagnation. You know the ...
Meet our 2025 TCS New York City Marathon Runners!
On Sunday, November 2nd, a dedicated team of five runners will take on the iconic streets of New York City in the world-renowned NYC Marathon—all ...
DSF-Funded Study Aims to Change the “Trial-and-Error” Approach to Treatment for Dravet Syndrome
Despite having several FDA-approved therapies and clear treatment guidelines, the approach to treat seizures for Dravet syndrome can often be a repeating cycle of ‘trial-and-error’ ...
Longitudinal Insights: Gathering Natural History Data for Dravet Syndrome
DSF recently announced funding for a Longitudinal Dravet Syndrome Natural History Study led by Dr. Kelly Knupp with The Dravet Lifespan Multidisciplinary Clinic at Children’s ...
Introducing a New Support Space for Dads Navigating Dravet Syndrome
When your child is first diagnosed with Dravet syndrome, everything changes, instantly and profoundly. Life as you knew it shifts. Suddenly, your days are filled ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!