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Getting Started with Transition Planning
With the constant care demands of your loved one with Dravet syndrome, it’s understandable that transition planning might not even be on your radar. Transitioning to ...
How Might the Budget Reconciliation Bill (HR 1) Affect Families Living with Dravet Syndrome?
With the recent passage of HR 1 by Congress, rare disease communities – including Dravet syndrome – are seeking clarity on how the new legislation ...
Neurophysiological characterization of the therapeutic effect of exogenous NaV1.1 channels
Else A. Tolner, PhD – Leiden University Medical Centre Neurophysiological characterization of the therapeutic effect of exogenous NaV1.1 channels Research Grant in the amount of ...
Understanding phenotypes and biomarkers leading to SUDEP in a transgenic rabbit model of Dravet syndrome
Lori L. Isom, PhD- University of Michigan Understanding phenotypes and biomarkers leading to SUDEP in a transgenic rabbit model of Dravet syndrome Special Project Funding: ...
Award Supplement for Genetic Substrates and Physiological Triggers for Autonomic and Cardiac Abnormalities in Dravet Syndrome
David Auerbach, PhD- The Research Foundation for SUNY/Upstate Medical University Award Supplement for Genetic Substrates and Physiological Triggers for Autonomic and Cardiac Abnormalities in Dravet ...
Take the Next Step in Support – Apply for a Caregiver Connect Grant!
Being a caregiver for someone with Dravet syndrome can feel overwhelming. It’s easy to feel like no one else understands our day to day experiences ...
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