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Supporting Dravet Syndrome Awareness: Join Our Annual T-Shirt Fundraiser
As we gear up for June and Dravet Syndrome Awareness Month, we are excited to announce our annual T-shirt fundraiser! Every year, supporters rally together ...
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The Genetics of Dravet Syndrome
For nearly 25 years now we have known that mutations in the sodium channel gene, SCN1A, can lead Dravet syndrome and related epilepsies. Since the ...
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Discovery in Fish Leads to a Clinical Trial for Dravet syndrome
Currently, the ARGUS Trial is enrolling participants with Dravet syndrome to evaluate if Clemizole (EPX-100) can reduce the number of seizures. Clemizole has a long ...
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Zorevunersen (STK-001) FAQs: Spotlight on the Upcoming Phase 3 Studies
This is an exciting time for the Dravet syndrome community. The first potentially disease-modifying treatment targeting the genetic cause of Dravet syndrome has completed initial ...
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CareCompass: A New Resource to Navigate Caregiving
DSF is pleased to share information about a new free platform developed by UCB, with input from the Dravet syndrome and Lennox-Gastaut syndrome patient communities: ...
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Dravet Syndrome Community Participates in Rare Disease Week on Capitol Hill
Several members of the Dravet syndrome community went to Washington, D.C. last week (February 24-26, 2025) to participate in Rare Disease Week on Capitol Hill. ...
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