DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Bentley’s Story: A Bright Light Through the Darkness of Dravet
June 13, 2025
As Dravet Remembrance Day approaches on June 15th, we’d like to share a heartfelt blog post written by Blake Fish about her son, Bentley. Bentley ...
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Dye It for Dravet: Show Your Colors, Support the Cause
June 6, 2025
June is almost here, and that means it’s time to break out the bold colors and stand up for a powerful cause – Dye It ...
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Turn Awareness into Action this June!
May 30, 2025
Each year, Dravet Syndrome Awareness Month – observed from June 1 to 30 in the U.S. – provides a crucial opportunity to highlight the often-overlooked ...
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See the Difference You Made – 2024 DSF Annual Report Now Available!
May 23, 2025
At DSF, we are guided by a commitment to transparency, accountability, and connection to our community. Each year, our annual report is more than just ...
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DSF Receives Platinum Nonprofit Seal of Excellence
May 16, 2025
DSF is proud to announce that it has once again received the Platinum Seal of Transparency from Candid, the highest level of recognition offered by ...
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Helping Families Manage the Cost of Care
May 9, 2025
Caring for a loved one with Dravet syndrome can lead to significant medical expenses. We understand that the need for support can arise at various ...
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