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A Decade of Platinum: Our Commitment to Transparency and Accountability
This year marks an important milestone for the Dravet Syndrome Foundation (DSF): ten consecutive years of earning the Platinum Seal of Transparency from Candid (formerly ...
DSF Advocates at Rare Disease Week on Capitol Hill
We had an incredible group of Dravet syndrome parents and grandparents in Washington, D.C. last week (February 24-27, 2026) to participate in Rare Disease Week ...
My granddaughter has a rare disease. But clinical trials often exclude patients like her.
As the grandfather of a girl with a rare disease, I’ve learned that for families like ours, hope often comes not as a cure, but ...
Investing in Smarter Predictions for Dravet Syndrome
Dravet Syndrome Foundation (DSF) us dedicated to funding research that will move new treatments forward and improve the quality of life for those living with ...
Give Up Your Cup (and Pour Hope Into a Cure!)
March is here – and that means it’s time for one of our simplest (and most fun) virtual fundraisers of the year: Give Up Your ...
2026 Community Book Club for Dravet Parents
In 2025, DSF launched a new program with the hope of connecting parents in a fresh and creative way: the Community Book Club. This virtual ...
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