DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Investing in Smarter Predictions for Dravet Syndrome
February 20, 2026
Dravet Syndrome Foundation (DSF) us dedicated to funding research that will move new treatments forward and improve the quality of life for those living with ...
Give Up Your Cup (and Pour Hope Into a Cure!)
February 13, 2026
March is here – and that means it’s time for one of our simplest (and most fun) virtual fundraisers of the year: Give Up Your ...
2026 Community Book Club for Dravet Parents
February 6, 2026
In 2025, DSF launched a new program with the hope of connecting parents in a fresh and creative way: the Community Book Club. This virtual ...
Raising Awareness for Dravet Syndrome: Why Social Media Matters
January 30, 2026
When my son was first diagnosed with seizures (even before his Dravet diagnosis which came several years later in 2015), I felt so alone in ...
Stronger Together: Welcome Our 13 Family Network Ambassadors
January 23, 2026
For several years, one of DSF’s programs has been our Family Network Ambassador (FNA) Program. This program is made up of veteran Dravet parents who ...
A Warm Welcome to Our Newest Staff Member!
January 16, 2026
Please join us in welcoming our new Marketing Manager & Digital Communications Manager, Amanda (Mandy) Nehme-Clicerio. Mandy brings a blend of professional marketing expertise and ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!