Skip to content

Stay up to date with our Research & Community News and our Decoding Dravet Blog

  • Join our email list to receive research and community news at this link
  • Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?) 
  • All
  • Community News & Programs
  • Decoding Dravet Blog
  • Research News

Bentley’s Story: A Bright Light Through the Darkness of Dravet

As Dravet Remembrance Day approaches on June 15th, we’d like to share a heartfelt blog post written by Blake Fish about her son, Bentley. Bentley ...
Read More →

Dye It for Dravet: Show Your Colors, Support the Cause

June is almost here, and that means it’s time to break out the bold colors and stand up for a powerful cause – Dye It ...
Read More →

Turn Awareness into Action this June!

Each year, Dravet Syndrome Awareness Month – observed from June 1 to 30 in the U.S. – provides a crucial opportunity to highlight the often-overlooked ...
Read More →

See the Difference You Made – 2024 DSF Annual Report Now Available!

At DSF, we are guided by a commitment to transparency, accountability, and connection to our community. Each year, our annual report is more than just ...
Read More →

DSF Receives Platinum Nonprofit Seal of Excellence

DSF is proud to announce that it has once again received the Platinum Seal of Transparency from Candid, the highest level of recognition offered by ...
Read More →

Helping Families Manage the Cost of Care

Caring for a loved one with Dravet syndrome can lead to significant medical expenses. We understand that the need for support can arise at various ...
Read More →
Berkley Dravet story

Join Our Mailing List

DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!

Scroll to Top

Join us at a Day of Dravet workshop