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Grief and Bereavement: Resources and Support from DSF
Grief is a complicated, heavy, and big emotion. And it is never so heavy as when someone we love dies. Especially when that death is ...
Why the Work of DSF Matters
When a parent first hears the words “Dravet syndrome,” their world shifts. Suddenly, they’re navigating a life marked by uncertainty – one filled with overwhelming ...
Patient Equity and Inclusion Committee
Starting out as the Health Equity Coordinator for the Dravet Syndrome Foundation (DSF), I knew I wanted DSF to be a place where everyone belongs ...
Sibling Companion Guide for the C.A.R.E. Binder
Over the past three blog posts (Week 1, Week 2, and Week 3), we’ve explored how the C.A.R.E. (Caring for Adults with Rare Epilepsy) Binder ...
Planning for Long Term Care and Medical Transition
In our last two blog posts (Week 1 and Week 2), we’ve explored how the C.A.R.E. (Caring for Adults with Rare Epilepsy) Binder can support ...
Taking a Deeper Dive into Transition Planning
In last week’s blog post, we introduced the C.A.R.E. (Caring for Adults with Rare Epilepsy) Binder and how it can help with transition planning. In ...
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