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Raising Awareness for Dravet Syndrome: Why Social Media Matters
When my son was first diagnosed with seizures (even before his Dravet diagnosis which came several years later in 2015), I felt so alone in ...
Stronger Together: Welcome Our 13 Family Network Ambassadors
For several years, one of DSF’s programs has been our Family Network Ambassador (FNA) Program. This program is made up of veteran Dravet parents who ...
A Warm Welcome to Our Newest Staff Member!
Please join us in welcoming our new Marketing Manager & Digital Communications Manager, Amanda (Mandy) Nehme-Clicerio. Mandy brings a blend of professional marketing expertise and ...
Registration is Now Open for the 2026 DSF Family & Professional Conference in Orlando!
We’re excited to share that registration is now open for the 2026 Dravet Syndrome Foundation (DSF) Family & Professional Conference, taking place June 25–27 in ...
How Will You Join Us in Building Momentum in 2026?
Looking ahead to the coming year, we are committed to building on the momentum our community has created. With your support, we will broaden our ...
Congratulations and Best Wishes to Dr. Sullivan!
All of us at DSF are pleased to extend our heartfelt congratulations to Joseph Sullivan, MD, as he enters an exciting new phase of his ...
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