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A Year of Gratitude and Progress for the Dravet Community
For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...
2025 Recipients of the Sofie’s Journey Scholarship for Epilepsy Awareness Day at Disneyland
What a dream come true! Sofie’s Journey awarded our family a scholarship to attend Epilepsy Awareness Day at Disneyland (EADDL) this year. We have talked ...
3rd Annual Pedal for a Purpose Raises Awareness and Hope for Dravet Syndrome
What began as a simple 109-mile recreational bike ride through the scenic Black Hills has transformed into a mission that’s touching lives around the world ...
Why We’re Asking for Your Support This Year—Because Families Can’t Wait
When Dravet Syndrome Foundation (DSF) began in 2009, it started with four parents and a bold vision: advance understanding of a little-known disease, create treatments ...
Reigniting Passion After Stagnation
Whether you’re new to the Dravet community or have walked this journey for years, chances are you’ve faced a season of stagnation. You know the ...
Meet our 2025 TCS New York City Marathon Runners!
On Sunday, November 2nd, a dedicated team of five runners will take on the iconic streets of New York City in the world-renowned NYC Marathon—all ...
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