Stay up to date on our Decoding Dravet Blog and Research & Community News
- Copy this link to our RSS Feed
- Click here to learn What is RSS?
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
Sharing Your Caregiver Story
DSF has recently launched a Caregiver Stories page on our website to assist families affected by Dravet syndrome in learning from one another’s experiences. By ...
Read More →
Join the Dravet Genome Study Today!
Long-term outcomes for patients with Dravet syndrome can vary quite a bit. Some patients may have more significant impacts on cognition or speech, while others ...
Read More →
DAF Day is October 10th!
We are proud to be participating in the first-ever DAF Day: a new day of giving designed to educate and inspire individuals to donate through ...
Read More →
C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy
Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. ...
Read More →
Order your DSF 15th Anniversary T-Shirt!
Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the ...
Read More →
Opportunities to Participate and Advance Research for Dravet Syndrome
Research advancements have led to improvements in clinical care and the development of novel treatments for Dravet syndrome (DS). Despite being rare, DS is one ...
Read More →
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!
