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Join DSF as we go Behind the Mystery of Dravet Syndrome!

As part of Dravet Syndrome Awareness Month this June, we were pleased to partner with The Balancing Act on their Behind the Mystery episode highlighting …

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DSF Parent Ambassador Introductions – Part 2

Last week, I had the honor of re-introducing our veteran Parent Ambassadors and introducing our newest Parent Ambassadors from the Midwest. This week, it is …

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DSF Parent Ambassador Introductions – Part 1

In April 2016, just 6 short years ago, we received the devastating news that our (then) 2 year old son had an SCN1A gene mutation. …

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Join DSF for Storytelling Sessions

As our community knows, rare diseases don’t receive as much attention from researchers or funders like diseases that affect larger populations. Most people do not …

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Welcome to our New Board Members!

We are excited to welcome our three new board members who began their 3-year term of service on April 15, 2022. Learn more about them …

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Dravet Syndrome International Consensus Project

Elaine C. Wirrell, MD – Mayo ClinicDSF Research Award – $75,000 (1 year project)Dravet Syndrome International Consensus Project (funding provide through unrestricted grants from Biocodex, Greenwich …

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DSF News & Notes - Past Newsletters

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