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Sharing Your Caregiver Story

DSF has recently launched a Caregiver Stories page on our website to assist families affected by Dravet syndrome in learning from one another’s experiences. By ...
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Join the Dravet Genome Study Today!

Long-term outcomes for patients with Dravet syndrome can vary quite a bit. Some patients may have more significant impacts on cognition or speech, while others ...
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DAF Day is October 10th!

We are proud to be participating in the first-ever DAF Day: a new day of giving designed to educate and inspire individuals to donate through ...
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C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy

Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. ...
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Order your DSF 15th Anniversary T-Shirt!

Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the ...
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Opportunities to Participate and Advance Research for Dravet Syndrome

Research advancements have led to improvements in clinical care and the development of novel treatments for Dravet syndrome (DS). Despite being rare, DS is one ...
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Berkley Dravet story

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15 years of DSF campaign banner
Double Your Impact for Dravet Families!

Every gift to our Annual Campaign before December 31 will be matched, dollar-for-dollar, up to $30,000. Don’t miss this chance to make twice the difference for families living with Dravet syndrome!

Celebrating 15 years of DSF

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