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Gobble, Gobble. Dash for Dravet is back!
Join our 7th annual Dash for Dravet on Thanksgiving Day! Before the feast, get your family and friends together for this virtual 5K (3.1 miles) …
Dravet Dads Meet-Up Informational Kickoff
It is no secret that mothers and female caregivers make up the majority of our Dravet Syndrome Foundation Parent and Caregiver Support Group. Our community …
Genetic Therapy for Dravet Syndrome: 2022 State of the Field
When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment …
Transitioning to Adulthood for Patients with Dravet Syndrome
When Dravet syndrome (DS) was first discovered by Dr. Charlotte Dravet in 1978, there was not a clear understanding of the expected lifespan for someone …
Stiripentol (DIACOMIT): History and New Expanded Approval
In July of this year, the US Food and Drug Administration (FDA) authorized the use of stiripentol (DIACOMIT) for patients with Dravet syndrome aged 6 …
DSF Strategic Plan Update
Much has changed in the field of Dravet syndrome since the inception of DSF in 2009. In 2018, DSF debuted its 5-year strategic plan to …
DSF News & Notes - Past Newsletters
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