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2022 Ciara’s Spirit of Hope Nominations are Open!

From 2010-2015, Ciara’s Butterfly Bash annual fundraising gala was named in honor of DSF Founder Lori O’Driscoll’s daughter. In January 2017, Ciara passed away from …

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Five Reasons to Attend the 2022 DSF Conference!

After having to postpone our scheduled conference in 2020, we are excited to be able to gather face-to-face again this June in Fort Worth, Texas. …

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Article Recap: Quality of Life in Genetic DEEs

In today’s blog we are recapping a recent publication by Cohen et al that reported the results of a study aimed at better understanding the …

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How to Read a Scientific Paper; Part 3: Critical Assessment

Today’s blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified …

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Phase 3 Trials for Soticlestat Begin

What is soticlestat? Soticlestat is an investigational medication that is currently in Phase 3 trials for the treatment of seizures in Dravet syndrome (1). Soticlestat …

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2022 Patient Assistance Grant Program is Now Open!

Our Patient Assistance Grant (PAG) program has been a part of our advocacy efforts since our inception in 2009. While it cannot fulfill all of …

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