DSF & Dravet Syndrome News
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Myla-Rose and “My Cause, My Cleats”
December 3, 2023
The NFL’s “My Cause, My Cleats” campaign is a fundraiser that allows players and staff to express their commitment to the causes that are most ...
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Extended monitoring for cardiac arrhythmias in Dravet syndrome
December 1, 2023
Mary Connolly, MB, BCh, FRCPC(C), FRCP(I), FRCP(Edin) – The University of British ColumbiaShubhayan Sanatani, MD, FRCPC – The Universty of British ColumbiaExtended monitoring for cardiac ...
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DS-TIME: a multi-assessment approach to uncover the underlying mechanisms of sleep disturbances in children with Dravet syndrome
December 1, 2023
Cristina Reschke, PhD – RCSI University of Medicine and Health SciencesDS-TIME: a multi-assessment approach to uncover the underlying mechanisms of sleep disturbances in children with ...
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Mechanistic investigation in a novel mouse model of early-onset SCN1A-related disorders
December 1, 2023
Sophie Hill, PhD – Children’s Hosptial of PhiladelphiaMechanistic investigation in a novel mouse model of early-onset SCN1A-related disordersPostdoctoral Fellowship – $75,000, 1 year Grant Summary: ...
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Establishing the role of the noradrenergic network during seizures in Dravet syndrome
December 1, 2023
Meiling Zhao, PhD – University of MichiganEstablishing the role of the noradrenergic network during seizures in Dravet syndromePostdoctoral Fellowship – $75,000, 1 year Grant Summary: ...
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Increasing clinical trial readiness in Dravet syndrome- Creation and pilot of Dravet-specific clinical outcome measures
December 1, 2023
Megan Abbott, MD – University of Colorado DenverIncreasing clinical trial readiness in Dravet syndrome- Creation and pilot of Dravet-specific clinical outcome measuresClinician-Researcher Award – $75,000, ...
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