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A diagnosis brought us together. Our hearts keep us together.
DSF will be hosting monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as …
Use Your Connections to Help DSF!
Do you own a business or work for a national company that would benefit from national attention, while supporting the Dravet syndrome community? Corporate donations …
Dads’ Meetup Registration
In a recent Decoding Dravet post, we took a moment to highlight fathers and father-figures in our community. During the Day of Dravet workshops, DSF …
Join us in welcoming our new staff members!
DSF started as a small, volunteer-led group in 2009 and has grown into a professional organization that serves patient families, healthcare professionals, researchers, industry partners, …
What We Accomplished Together in 2022
Together, the Dravet syndrome community managed to accomplish some pretty amazing things in 2022. The year started off with our virtual Externally-Led Patient-Focused Drug Development …
Happy Holidays from DSF!
As we close out the year, we wanted to send our holiday wishes to our amazing community!
DSF News & Notes - Past Newsletters
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