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Virtual DSF Steps Toward a Cure
While we are excited to have some of our Steps Toward a Cure events happening back in person this year, we have decided to continue …
2022 Day of Dravet Virtual Workshop
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one …
Preclinical Development of a Gene Therapy for Dravet Syndrome
A recent publication from Tanenhaus et al details the preclinical work by Encoded Therapeutics that has led to the development of a potential gene regulation …
DSF Steps Toward a Cure
Are you looking for a fun way to give back to DSF and help raise awareness of Dravet syndrome? Consider hosting a Steps Toward a …
Dravet Syndrome Voice of the Patient Report
DSF has released its Dravet Syndrome Voice of the Patient report, summarizing outcomes from a February 2022 Externally Led Patient Focused Drug Development (EL-PFDD) meeting. For …
2022 DSF Family & Professional Conference Recap
The Dravet Syndrome Foundation (DSF) held a Family & Professional Conference in Fort Worth, Texas on June 23-25 of 2022 in collaboration with Dr. Scott …
DSF News & Notes - Past Newsletters
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