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Virtual DSF Steps Toward a Cure

While we are excited to have some of our Steps Toward a Cure events happening back in person this year, we have decided to continue …

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2022 Day of Dravet Virtual Workshop

Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one …

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Preclinical Development of a Gene Therapy for Dravet Syndrome

A recent publication from Tanenhaus et al details the preclinical work by Encoded Therapeutics that has led to the development of a potential gene regulation …

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DSF Steps Toward a Cure

Are you looking for a fun way to give back to DSF and help raise awareness of Dravet syndrome? Consider hosting a Steps Toward a …

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Dravet Syndrome Voice of the Patient Report

DSF has released its Dravet Syndrome Voice of the Patient report, summarizing outcomes from a February 2022 Externally Led Patient Focused Drug Development (EL-PFDD) meeting. For …

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2022 DSF Family & Professional Conference Recap

The Dravet Syndrome Foundation (DSF) held a Family & Professional Conference in Fort Worth, Texas on June 23-25 of 2022 in collaboration with Dr. Scott …

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DSF News & Notes - Past Newsletters

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