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Dye it for Dravet is back!
Last year for Dravet Syndrome Awareness Month, we debuted Dye it for Dravet, after DSF Parent Ambassador Jen Kuhn and her hair stylist, Kelsi Morgan …
June is Dravet Syndrome Awareness Month!
June is Dravet Syndrome Awareness Month in the U.S. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve …
Day of Dravet Workshops
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one …
Fighting for a Cure through Fundraising
As we edge closer to our second Steps Toward a Cure event benefiting the Dravet Syndrome Foundation, I feel led to tell Will’s story and …
Thank You, Bridget!
One of our very own patients deserves special recognition for her recent fundraising efforts. Bridget Fullam, an 18 year old living with a Dravet syndrome …
T-Shirt Fundraiser Benefiting DSF!
We invite all members of the Dravet syndrome community – patient families, clinicians, researchers, and industry partners – to join us in supporting our bi-annual …
DSF News & Notes - Past Newsletters
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