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Get your DSF t-shirt for Dravet Awareness Month!
In a world where thousands of causes are vying for attention and support, T-shirt fundraisers have emerged as a powerful tool in the realm of ...
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Updates on STK-001: A Possible Disease-Modifying Therapy for Dravet Syndrome
There have been some exciting data releases from Stoke Therapeutics regarding their Phase 1/2a trial for the investigational therapy, STK-001, that suggest this could be ...
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2023 Annual Report
I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors. From ...
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Making a Lasting Impact: The Power of Non-Cash Charitable Contributions for Dravet Syndrome
Dear Friends of Dravet Syndrome Foundation (DSF), In the journey of making a difference in the lives touched by Dravet syndrome, every contribution holds the ...
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DSF Advocates for Rare Diseases in Washington, DC
Several DSF staff members from our Patient Advocacy Team went to Washington, DC last month to participate in Rare Disease Week on Capitol Hill. This ...
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10 Reasons to Attend the DSF Family & Professional Conference
I have attended two Dravet syndrome educational conferences – the first one was in 2010 in Connecticut, and the second one was DSF’s Family and ...
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