DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Dravet Genome Study Update
February 7, 2025
Long-term outcomes for patients with Dravet syndrome can vary quite a bit. Some patients may have more significant impacts on cognition or speech, while others ...
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Engaging with DSF in 2025
January 31, 2025
As we embark on a new year, I encourage you to make the most of your involvement with DSF by exploring the various programs and ...
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2025 Day of Dravet Workshops
January 24, 2025
DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with ...
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DSF Community Book Club
January 17, 2025
We are excited to announce that DSF is launching its first Community Book Club and we can’t wait to share this experience with you! The ...
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Staff Changes at DSF
January 10, 2025
We are excited to share some recent changes to our staff with the community! Melissa O’Bryan is joining our team as our new Administrative Assistant. ...
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2025: New Year, New Opportunities
January 3, 2025
At the end of each year, I, along with our Board of Directors, conducts a comprehensive review of our strategic priorities for the upcoming year, ...
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