2023 Annual Report

I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors.

From our humble beginnings, the focus of DSF has remained steadfast – advancing our collective understanding of Dravet syndrome, providing support and advocacy, securing new treatments, and tirelessly working towards finding a cure. Our commitment to transparency, inclusion, impact, and collaboration has guided every aspect of our organization, shaping our values and actions.

In December 2023, I had the honor of receiving the Extraordinary Contributions to the Field of Epilepsy Award from the American Epilepsy Society. This recognition is not only a personal accolade but a testament to the collective effort of our entire community. I humbly acknowledge that our progress is a result of the collaborative spirit that binds us together, and we would not be where we are today without the unwavering support of our stakeholders. So, to our dedicated supporters, patient families, researchers, clinicians, staff, volunteers, and pharmaceutical and biotech partners – thank you. Your contributions have been instrumental in advancing the field of Dravet syndrome and improving the quality of life for patients and their families. Your support fuels our critical efforts, and we are immensely grateful for the strength of our community.

We are excited about the possibilities that lie ahead and are committed to continuing our efforts to make a lasting impact. I am genuinely looking forward to the next phase of our journey together and the opportunities it presents for us to make a meaningful difference in the lives of all of those affected by Dravet syndrome. I encourage you to read our 2023 Annual Report to learn more about our impact.

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