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Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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Unite Us – a New Program for Patient Families

DSF is excited to announce our partnership with the Child Neurology Foundation and Unite Us, the nation’s leading technology company connecting health and social care services, to launch a new program that will connect families in the Dravet syndrome community to vital resources. Intended to fill a gap reported by families, this partnership is a …

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DSF is hiring!

A signal of our organization’s growth and success is our need to add two new staff members to our team. We are excited to announce we are accepting applications for an administrative assistant and a fundraising assistant. Are you an administrative and/or fundraising professional with a passion for helping the Dravet syndrome community and making …

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Updated Professional Education Video Series

National Epilepsy Awareness Month in November is an annual event that teaches people about epilepsy’s causes and symptoms. During this month, many organizations join together to provide information about prevention, treatment, research, and resources to fight epilepsy. DSF takes this opportunity each year to highlight Dravet syndrome and the complexities of this severe form of …

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Transitioning to Adulthood for Patients with Dravet Syndrome

When Dravet syndrome (DS) was first discovered by Dr. Charlotte Dravet in 1978, there was not a clear understanding of the expected lifespan for someone diagnosed with DS. Earlier diagnosis and advances in treatment have improved the prognosis and life expectancy of DS, meaning that more than 80% of patients will survive beyond the age …

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