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Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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The 2023 DSF Patient Assistance Grant Program is now open!

Medical expenses are high when you have a loved one with Dravet syndrome, and we know everyone in our community needs help at one time or another. By providing financial assistance for necessary medical equipment, the DSF Patient Assistance Grant (PAG) Program provides a valuable resource to patients, helping them offer the best quality of care …

The 2023 DSF Patient Assistance Grant Program is now open! Read More »

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Join us in welcoming our new staff members!

DSF started as a small, volunteer-led group in 2009 and has grown into a professional organization that serves patient families, healthcare professionals, researchers, industry partners, and other stakeholders in the Dravet syndrome community. In addition to offering resources, education, and support to patient families, we are the largest non-governmental funder of Dravet syndrome-specific research and …

Join us in welcoming our new staff members! Read More »

Collaborators NASN

NASN – Coordinated Support System for Students with Epilepsy (CSSSE) Advisory Group

As a CSSSE Advisory Group member, DSF will make key contributions to the project, including: Review of Needs Assessment results (Navigator and participating school nurses) – provide recommendations on PD, tools, and resources to address identified nursing practice gaps Identify key resources to populate a NASN web page dedicated to a whole child/student-centered approach to …

NASN – Coordinated Support System for Students with Epilepsy (CSSSE) Advisory Group Read More »

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