Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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Fundraising Handbooks

Whether you opt to organize a gala, arrange a fundraising walk, initiate a social media fundraiser, or engage in a virtual event, you play a crucial role in transforming the landscape of Dravet syndrome. Our team is committed to assisting you throughout your fundraising journey, recognizing that your efforts are vital in sustaining our vibrant […]

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 15 Years of Raising Awareness of Dravet Syndrome

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research.  15 years of connecting and supporting families. 15 years of raising awareness of Dravet

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Chat & Connect

DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask questions of DSF and its staff. We know that exposure to stories, insights, and information sharing is particularly helpful when you are caring for someone with Dravet syndrome. Chat &

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Amanda Prather

Amanda lives in Ocean City, Maryland with her husband and two children, Mason and Abigail. She works as a Physician Assistant in Primary Care and Emergency Medicine and is looking forward to using her experience as both a healthcare provider and Dravet parent during her time on the board.  Amanda was thrown into the Dravet

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Gloria Rodriguez

Gloria was born in Houston, Texas and grew up in South Houston. She graduated from Pasadena High School and while working with the public as a civil servant, she earned a Bachelor of Science degree in Psychology from the University of Houston – Clear Lake. In 2023, she received a Master of Science in Health

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Teko

Tell us about yourself and the Dravet patient in your life My name is Mariam, mother to a Dravet syndrome patient. Close to Lake Victoria, in Kenya, a strong and brave little boy known as Teko-was born a healthy boy, very handsome and sweet. Teko loved to sing and could imitate his father singing and

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