Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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Celebrating 15 Years!

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research.  15 years of connecting and supporting families. 15 years of raising awareness of Dravet […]

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Meredith Bankston Promoted to Event Coordinator

Dravet Syndrome Foundation (DSF) is excited to announce the promotion of Meredith Bankston to Event Coordinator. Meredith joined the organization in 2022 and has demonstrated dedication and skill in her previous role as Fundraising Assistant, leading to her advancement within the organization. In her new position, Meredith will play a crucial role in overseeing and

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An artificial intelligence/machine learning approach to predicting anti-seizure medication efficacy in Dravet syndrome

A major challenge in the management of many epilepsies, including Dravet syndrome (DS), is the prolonged trial and error approach of determining whether or not a specific antiseizure medication (ASM) will work for a given patient. Testing an add-on therapy can take many months before it is determined to be ineffective, and for some it

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Cheyenne Wolf – Development Coordinator

Cheyenne Wolf, a Central New Jersey native, brings a wealth of experience and a passion for non-profit development to her role as Development Coordinator. A graduate of Hightstown High School, Class of ’09, Cheyenne’s academic journey began when she was awarded the merit-based ‘NJ STARS’ scholarship, affording her studies at Mercer County Community College. In

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DSF is designated an official “Give with Confidence” charity by Charity Navigator!

Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates our organization’s operational excellence and our rating reflects our strong financial health and ongoing accountability and financial transparency. And, this rating designates DSF as an official “Give with Confidence” charity!

DSF is designated an official “Give with Confidence” charity by Charity Navigator! Read More »

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