Family Network and Brand Ambassadors
DSF Family Network and Brand Ambassadors
One of the facets of DSF is the Family Network and Brand Ambassador programs. Both programs are made up of caregivers of Dravet syndrome patients. These volunteers act as signposts to help guide others to our organization who are looking for support, education, and awareness. They help facilitate communication within our community, between our community and DSF, and help to further the mission of our foundation. They do this by engaging in social media, our online support groups, fundraising, and attending live and virtual events. Family Network Ambassadors are selected from each of the five regions: West, Mountain, Midwest, Northeast, and Southeast. We are looking forward to growing both programs in the coming year with the intention to have 2-3 Family Network Ambassadors per region and a cohort of five Brand Ambassadors.
Our Ambassadors are an irreplaceable part of #TeamDSF. Learn more about our Ambassadors and reach out for support. Applications are now being accepted for the Brand Ambassador program.
Northeast Family Network Ambassadors
Amy Lopez - MA
Northeast Ambassador
Siobhan Grevelding - NY
Northeast Ambassador
Aleksi Ilmonen - NJ
Northeast Ambassador
Jennifer Marasco Kuhn - PA
Northeast Ambassador
Southeast Family Network Ambassadors
Allen Golec - FL
Southeast Ambassador
Brenda Ferrell - TN
Southeast Ambassador
Erin Frost - NC
Southeast Ambassador
Tatiana Lopez - FL
Southeast Ambassador
Midwest Family Network Ambassadors
Brenda Tisdale - IL
Midwest Ambassador
Kayci Capps - MO
Midwest Ambassador
Tina McDermott - IA
Midwest Ambassador