DSF Parent Ambassador

Kayci Capps – MO (Midwest)

Kayci Capps- MO (Midwest)

Kayci is a mom to three amazing kids, Benjamin, William, and Charlotte. She is also a Kindergarten teacher at a local public school. Her husband, Adam, is in the Air Force and they currently live near St. Louis, Missouri. Her middle son, William, was diagnosed with Dravet syndrome at 6 months old after having several seizures lasting from 50 minutes up to 3 hours, thus prompting genetic testing. Kayci began fundraising for Dravet syndrome shortly after Will’s diagnosis. She also passed “Will’s Law”, requiring school employees in Missouri to have seizure safety training.

Kayci found a connection and support with the other moms in the Dravet syndrome support group and found herself on the other side of things, helping other parents navigate this diagnosis like others has helped her. As a DSF Parent Ambassador, she is so excited to immerse herself in helping other families like she has been helped. While she doesn’t have a lot of free time with three kids and teaching, she loves to read, skate, and go to Target.

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