DSF Parent Ambassador

Kayci Capps – MO (Midwest)

Kayci Capps DSF Parent Ambassador

Kayci is a stay- at- home mom to three amazing kids, Benjamin, William, and Charlotte. Her husband, Adam, is in the Air Force and they currently live near St. Louis, Missouri. Her middle son, William, was diagnosed with Dravet syndrome at 6 months old after having several seizures lasting from 50 minutes up to 3 hours, thus prompting genetic testing. Kayci began fundraising for Dravet syndrome shortly after Will’s diagnosis. She found a connection and support with the other moms in the Dravet syndrome support group and recently found herself on the other side of things, helping other parents navigate this diagnosis. As a DSF Parent Ambassador, she is so excited to immerse herself in helping other families like she has been helped. While she doesn’t have a lot of free time with three kids, she loves to read when she finds the time. She enjoys driving in her purple ribbon-clad mini van listening to 2000s punk rock. She loves skating and wandering aimlessly around Target.

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