DSF Parent Ambassador

Morgan Turpin – CA (West)

Morgan Turpin – California

Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 11), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would take another ten months before he would officially receive a diagnosis of Dravet syndrome. When he was three, Morgan decided to join the online DSF Facebook support group, and over the years she has enjoyed developing relationships with other Dravet families spread across the globe.

Morgan earned her B.S. in Biology from the University of California, Irvine. After graduation, she went on to become a licensed Clinical Genetics Molecular Biologist, and the company she went to work for was the same one who would perform her son’s genetic testing years later. Her background in genetics has been a huge asset as she navigates the complicated world of Dravet syndrome. When she is not working, she enjoys writing about the challenges of raising a child with a complex medical diagnosis, and has published multiple pieces for the online disability site The Mighty. She also enjoys outings with her family to explore all of the things Southern California has to offer- with favorite spots including Legoland, The San Diego Zoo and Safari Park, and Disneyland.

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