This June – Help Us Raise Awareness of Dravet Syndrome!

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our fourth annual Remembrance Day, June 15, 2024.

By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is DSF’s tagline: Community. Research. Progress.


  • Through May 12th, order your 2024 Dravet Syndrome Awareness month gear!
  • June 1-30: Dye it for Dravet fundraising challenge kicks off
  • June 15:  4th Annual Dravet Remembrance Day
  • June 22: Wings of Hope Butterfly Release
  • June 23:  International Dravet Syndrome Awareness Day

Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to raise public awareness of Dravet syndrome in one or more ways this June. #curedravet

How You Can Get Involved

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Spread Awareness

Follow us on social media, and like and share our daily posts to help raise awareness! You can also customize our Dravet Facts to share or update your Facebook profile picture with the links (see below). Tag DSF and use the hashtag #curedravet

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Start a Fundraiser

Join our June fundraiser and help us raise public awareness of Dravet syndrome. Set up a personal fundraiser page or participate in Dye it for Dravet. Raise $500 or more and earn 50 Dravet Dollars for use in our online store. #curedravet 

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Remembrance Day

Our 4th annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday

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Awareness Day

On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. #dravetawarenessday

Customize our "Dravet Syndrome Facts" with your loved one's photo!

Click here to view and customize any or all 30 “Dravet Syndrome Facts” designs!

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Dravet Awareness Month Profile Frame Open AccessTo make your custom Facebook Profile Picture on Canva:
  • Click on this link
  • Sign up for a free account on Canva
  • IMPORTANT: Click on “File”, then click on “Make a Copy”. This will preserve the file for others to use.
    • To customize the template with your photo(s), click on “Uploads”, then click “Upload Files”.
    • Upload a photo of your choice from the files on your computer or phone. An optimal photo size of 300×300 squares is recommended, but you’ll have the flexibility to adjust its placement.
  • Drag the photo onto the  Facebook Profile template of your choice and insert the photo into the frame. 
  • To download your customized graphic(s) click share, then download.
  • Upload your new profile picture to your Facebook account.
  • For questions or assistance, please contact us.
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