This June – Help Us Raise Awareness of Dravet Syndrome!
Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our third annual Remembrance Day, June 15, 2023.
By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is DSF’s new tagline: Community. Research. Progress.
2023 KEY DATES:
- June 1-30: Dye it for Dravet Challenge fundraising challenge kicks off
- June 15: 3rd Annual Dravet Remembrance Day
- June 23: International Dravet Syndrome Awareness Day
Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to raise public awareness of Dravet syndrome in one or more ways this June. #curedravet
How You Can Get Involved
Our 3rd annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday
On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. #dravetawarenessday
Follow us on all of our social media channels, then be sure to like and share our daily posts to help raise awareness! Make sure to use the hashtag #curedravet