Dravet Syndrome Awareness Month

30 Days of Action!

This June – Help Us Turn Awareness Into Action!

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our 5th annual Remembrance Day – June 15, 2025.

By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families.

This year’s theme is Turning Awareness into Action!

2025 KEY DATES:

June 1-30: Dye it for Dravet fundraising challenge kicks off
June 15: 5th Annual Dravet Remembrance Day – Our Remembrance Day video link goes live on our public Facebook page at 12pm EST
June 23: International Dravet Syndrome Awareness Day

Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to raise public awareness of Dravet syndrome in one or more ways this June. #curedravet #advocatefordravet

How You Can Get Involved

Use our advocacy tools to help spread awareness and take action in June. You can utilize our 30 Days of Advocacy calendar, Dravet Facts graphics, and more! Click here to access the toolkit.

Follow us on all of our social media channels to like and share our daily posts to help raise awareness! Tag DSF and use the hashtags #curedravet and #advocatefordravet

Join our June fundraiser and help us raise public awareness of Dravet syndrome. Set up a personal fundraising page or participate in Dye it for Dravet. Raise $500 or more and earn 50 Dravet Dollars for use in our online store. #curedravet

Create your custom social media profile picture to raise awareness! Use your profile picture to show support for DSF during Dravet Syndrome Awareness Month. Click here for details on how to customize your profile picture.

Our 5th annual Dravet Remembrance Day takes place on June 15th and is a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday

On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. Consider sharing your story, contacting your legislator, requesting a proclamation, or hosting an awareness event. #dravetawarenessday