2022 Virtual Day of Dravet Workshop - September 24, 2022
DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. This year’s one-day workshop takes place on Saturday, September 24th from 12-5 ET, followed by caregiver lounges from 6-7 ET. You can see the full agenda below.
Learn about topics you have heard about and get accurate information to help you make confident and appropriate decisions on what will be helpful for your loved one’s care. Sessions are presented by community experts – including other parents.
Thanks to the generous support of our sponsors, there are no registration fees for this year’s event.
LOGIN INFORMATION HAS BEEN EMAILED TO ALL REGISTERED ATTENDEES. If you did not receive your login information, please email firstname.lastname@example.org.
Day of Dravet Agenda
|12:00-12:10pm ET||Welcome||Mary Anne Meskis - DSF Executive Director; with a special welcome from actor Greg Grunberg|
|12:10-12:30pm ET||The Caregivers Guide to Thriving||Amanda Stansfield - Dravet Parent & Health Coach|
|12:30-1:25pm ET||Sources of Distress: Turning Insights into Advocacy||Deborah Bilder, MD - University of Utah|
|1:25-1:40pm ET||LIVE Q&A with Dr. Bilder||Deborah Bilder, MD - University of Utah|
|2:10-3:05pm ET||Centering the Good: Finding your voice (and confidence) as the good parent you are!||Blyth Lord - Courageous Parents Network|
|3:05-3:20pm ET||LIVE Q&A with Blyth Lord||Blyth Lord - Courageous Parents Network|
|3:20-4:25pm ET||A conversation with Dads, for Dads||David Hirsch - 21st Century Dads Foundation & Special Fathers Network|
|4:25-4:30pm ET||Closing Remarks||Mary Anne Meskis - DSF Executive Director, and Erin Reoyo - DSF Family Network Liaison|
|5:00-5:30pm ET||Get Movin' with Metal||Parents and Caregivers are invited to join in this joyful movement session.|
|5:30-7:00pm ET||Caregiver Connect Lounge||Parents and Caregivers are invited to join in this open discussion. Come make connections, ask questions, and offer support.|