DSF Parent Ambassador

Siobhan Grevelding – NY

Siobhan Grevelding - NY

Siobhan is a dedicated caregiver to her youngest son, Lennox, who was diagnosed with Dravet syndrome in June 2021 at just one year old. Residing in Syracuse, New York, Siobhan is part of a large blended family of seven.

 Siobhan made the difficult decision to leave her full-time position in the restaurant industry after Lennox was Diagnosed with Dravet Syndrome at 1 year old. However, this change allowed her to not only care for her son but also become an advocate for parent-paid caregivers on both national and state levels. Siobhan has passion for advocating and supporting families in similar situations.

 She is excited to continue learning and advocating with the Dravet Syndrome Foundation with this position.

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