Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

Avatar photo
Website images 300x300 1

Cheyenne Wolf – Development Coordinator

Cheyenne Wolf, a Central New Jersey native, brings a wealth of experience and a passion for non-profit development to her role as Development Coordinator. A graduate of Hightstown High School, Class of ’09, Cheyenne’s academic journey began when she was awarded the merit-based ‘NJ STARS’ scholarship, affording her studies at Mercer County Community College. In

Cheyenne Wolf – Development Coordinator Read More »

DSF Homepage Dravet Family

DSF is designated an official “Give with Confidence” charity by Charity Navigator!

Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates our organization’s operational excellence and our rating reflects our strong financial health and ongoing accountability and financial transparency. And, this rating designates DSF as an official “Give with Confidence” charity!

DSF is designated an official “Give with Confidence” charity by Charity Navigator! Read More »

Scroll to Top
Skip to content