Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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15 Years of Collaborative Partnerships

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research.  15 years of connecting and supporting families. 15 years of raising awareness of Dravet

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Epilepsy Awareness Day at Disneyland – November 2024 Scholarship Award

This year, DSF has the opportunity to sponsor a family (up to 4 people) to attend this incredible event, thanks to a sponsorship from Sofie’s Journey. What does the sponsorship cover? The sponsorship covers ground transportation, flights, hotel accommodations, stipend for meals and tickets to Disneyland for Wednesday, November 20, 2024 for a family of

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New DSF Legislative Advocacy Program Kicks Off

As the Dravet syndrome patient community approaches the possibility of ASO and gene therapy advancements, DSF acknowledges the importance of proactive planning to ensure seamless patient access and insurance coverage when these treatments become available. This year, we launched our latest initiative, our Legislative Advocacy Program, aimed at ensuring that the concerns of our community

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Fundraising Handbooks

Whether you opt to organize a gala, arrange a fundraising walk, initiate a social media fundraiser, or engage in a virtual event, you play a crucial role in transforming the landscape of Dravet syndrome. Our team is committed to assisting you throughout your fundraising journey, recognizing that your efforts are vital in sustaining our vibrant

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 15 Years of Raising Awareness of Dravet Syndrome

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research.  15 years of connecting and supporting families. 15 years of raising awareness of Dravet

 15 Years of Raising Awareness of Dravet Syndrome Read More »

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