Tell us about yourself and the Dravet Patient in your life My family and I live in Crossville, Tennessee. We love spending every day with our little warrior and watching his favorite movie, Toy Story. When did the patients seizures begin? Bentley’s first seizure was when he was 4 months old. It was a short […]
I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors. From our humble beginnings, the focus of DSF has remained steadfast – advancing our collective understanding of Dravet syndrome, providing support and advocacy, securing new treatments, and tirelessly working towards finding
2023 Annual Report Read More »
The 2024 DSF Family & Professional Conference will take place from June 20-22 at the JW Marriott Minneapolis Mall of America, just 2.5 miles from the Minneapolis-St Paul International Airport. This 3-day event is crafted to bring together all stakeholders dedicated to enhancing the quality of life for individuals with Dravet syndrome – including families,
DSF Conference Scholarships Read More »
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This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
Celebrating 15 Years! Read More »
It all started in 2009, when four parents came together looking for connection with one another and a desire to improve outcomes for their own children who had been diagnosed with Dravet syndrome (DS). Since then, there have been many exciting advancements in the field of DS, many thanks in part to DSF. We have
DSF 5-year Strategic Plan Read More »
Dravet Syndrome Foundation (DSF) is excited to announce the promotion of Meredith Bankston to Event Coordinator. Meredith joined the organization in 2022 and has demonstrated dedication and skill in her previous role as Fundraising Assistant, leading to her advancement within the organization. In her new position, Meredith will play a crucial role in overseeing and
Meredith Bankston Promoted to Event Coordinator Read More »
This has been an exciting year for the field of Dravet syndrome and DSF. The success of DSF and our many accomplishments is all due to our engaged patient community and loyal supporters. As a result of that support, in 2023, DSF had many exciting highlights: We awarded 8 research grants, totally $2.475M, including an
Community. Research. Progress. Updates from 2023! Read More »
This holiday season, we want to say thank you. Your support has made a significant impact on our organization and community, and we are truly grateful. Wishing you a happy, healthy, and peaceful holiday season! Â
Holiday Wishes from DSF Read More »
A major challenge in the management of many epilepsies, including Dravet syndrome (DS), is the prolonged trial and error approach of determining whether or not a specific antiseizure medication (ASM) will work for a given patient. Testing an add-on therapy can take many months before it is determined to be ineffective, and for some it
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