DSF Board Members
Ashley resides in Westlake, Louisiana with her three children, Michael, age 9, and Samuel, age 6, and Katie, age 1. Ashley’s daughter, Katie was diagnosed with Dravet Syndrome at six months old. The Dravet Syndrome Foundation and community is a source of strength and comfort to her. She is proud to be part of an …
Clare’s daughter, Alexis, had her first seizure before she was three months old. In 2006, at the age of 17 months, she was diagnosed with Dravet syndrome. During this difficult journey, the Dravet Syndrome Foundation has been a lifeline for their family, connecting them to a supportive community and giving them hope for a cure …
Nathan lives in Atlanta, Georgia with his wife Whitney, and his two sons: Cooper 5 and Colton 3. Cooper had his first seizure at 7 months of age. He had many subsequent seizures before his he was diagnosed at age 2 with Dravet syndrome, when he was found to carry a SCN1A gene mutation. Nathan …
Josh lives in the Boston area with his wife Stephanie and two young children. His family has been personally touched by Dravet syndrome and the tremendous challenges faced by patients and their families. Josh has also witnessed the incredible progress that DSF is making in terms of research and patient outreach. Josh joined the DSF …
Ross lives in Atlanta, GA with his wife Polly and their three children Millie, Finn, and Henry – who has Dravet syndrome. Henry was diagnosed in March 2008. He had his first seizure at 3 months, lasting over an hour. By his second birthday, Henry had spent over 70 days in the hospital: often in …
Ted lives in Bannockburn, Illinois with his wife Pat. They have three adult children. They have four grandchildren, and their 2nd, Anna. was diagnosed with Dravet syndrome in 2018. Ted has been in leadership roles at both large and small companies in the pharmaceutical and biotechnology industries over the last 40 years. Dr. Ted earned …
Kate’s daughter Morgan was diagnosed with Dravet syndrome at only 6 months old. Although they received an early diagnosis, Morgan was medically fragile for the first 2 years of life; suffering frequent seizures and related medical complications. Her family turned to organizations like the Dravet Syndrome Foundation for guidance and support. The outreach and leadership …
© Copyright 2022 | Dravet Syndrome Foundation | All Rights Reserved
