DSF Board Members

Amanda lives in Ocean City, Maryland with her husband and two children, Mason and Abigail. She works as a Physician Assistant in Primary Care and Emergency Medicine and is looking forward to using her experience as both a healthcare provider and Dravet parent during her time on the board.  Amanda was thrown into the Dravet […]

Gail brings more than 25 years of pharmaceutical development and regulatory rare disease experience with both large and small pharmaceutical companies. She was most recently the chief executive officer of ProMIS, a biotechnology company focused on the generation of antibody therapeutics for neurodegenerative diseases. Prior to ProMIS, Gail was the executive vice president and global

After 37 years as a family practitioner, Bill and his wife Ileen enjoyed his retirement over the last 4 years at their home 30 miles east of Seattle. Together they enjoy 5 children and 5 grandchildren. Their youngest grandchild Zoe lives with her parents in San Francisco. She is now 2 years old, but was

Brad has over 20 years of experience leading and building global drug development and medical affairs teams focused in pain and epilepsy,  Currently he is Chief Medical Officer at Rapport Therapeutics.  Prior he was Executive Vice President and Chief Medical Officer at Zogenix, President of the Pain Group at Nuvo Research, and Senior Medical Officer

Ashley resides in Westlake, Louisiana with her three children, Michael, age 9, and Samuel, age 6, and Katie, age 1. Ashley’s daughter, Katie was diagnosed with Dravet Syndrome at six months old. The Dravet Syndrome Foundation and community is a source of strength and comfort to her. She is proud to be part of an

Clare’s daughter, Alexis, had her first seizure before she was three months old. In 2006, at the age of 17 months, she was diagnosed with Dravet syndrome. During this difficult journey, the Dravet Syndrome Foundation has been a lifeline for their family, connecting them to a supportive community and giving them hope for a cure

Nathan lives in Atlanta, Georgia with his wife Whitney, and his two sons: Cooper 5 and Colton 3.  Cooper had his first seizure at 7 months of age. He had many subsequent seizures before his he was diagnosed at age 2 with Dravet syndrome, when he was found to carry a SCN1A gene mutation. Nathan

Josh lives in the Boston area with his wife Stephanie and two young children. His family has been personally touched by Dravet syndrome and the tremendous challenges faced by patients and their families. Josh has also witnessed the incredible progress that DSF is making in terms of research and patient outreach. Josh joined the DSF

Ross lives in Atlanta, GA with his wife Polly and their three children Millie, Finn, and Henry – who has Dravet syndrome. Henry was diagnosed in March 2008. He had his first seizure at 3 months, lasting over an hour.  By his second birthday, Henry had spent over 70 days in the hospital: often in

Ted lives in Bannockburn, Illinois with his wife Pat. They have three adult children. They have four grandchildren, and their 2nd, Anna. was diagnosed with Dravet syndrome in 2018. Ted has been in leadership roles at both large and small companies in the pharmaceutical and biotechnology industries over the last 40 years. Dr. Ted earned