Amanda lives in Ocean City, Maryland with her husband and two children, Mason and Abigail. She works as a Physician Assistant in Primary Care and Emergency Medicine and is looking forward to using her experience as both a healthcare provider and Dravet parent during her time on the board.Â
Amanda was thrown into the Dravet syndrome world in 2018 when her 6-year-old son Mason had his first seizure at four months old. After multiple severe, prolonged seizures Mason was diagnosed with Dravet syndrome at 7 months old. The Dravet Syndrome Foundation was an invaluable resource to Amanda during the early days of Mason’s diagnosis.Â
Amanda has been a constant advocate for her son seeking all treatment options and therapies, but she quickly learned that effective treatment options are limited. She has made it her mission to share their story to promote Dravet syndrome awareness and raise money to find better treatment options and hopefully someday a cure, for Mason and the others who suffer from this catastrophic condition.
In August 2023, Amanda hosted the first annual Marlins for Mason Billfish Release Tournament, raising over $313,000 for DSF. Marlins for Mason is now a non-profit organization and yearly event with all proceeds donated to DSF. Their fundraising site is www.marlinsformason.com
In her free time, Amanda enjoys going to the beach, fishing, and spending time with family and friends.
