Clare Carey – Secretary

Clare Carey DSF Board Member

Clare’s daughter, Alexis, had her first seizure before she was three months old. In 2006, at the age of 17 months, she was diagnosed with Dravet syndrome. During this difficult journey, the Dravet Syndrome Foundation has been a lifeline for their family, connecting them to a supportive community and giving them hope for a cure by pushing the research forward.

In March 2011, the Carey family hosted Luck Be Alexis Tonight, a casino night fundraiser for DSF. The fundraiser marked a turning point in coping with a disorder they had little control over. The support they received from their family, friends, and community was incredible. It has become an annual event and a way for them to make a positive impact.

Clare is originally from England. Her professional career began as a dancer, giving her a wonderful opportunity to travel around the world, and ultimately brought her to the United States. She then made a career change, and in 2002 graduated from the University of Utah with a Master’s degree in Physical Therapy. Her career as a physical therapist was short, as she chose not to return to work after Alexis began having seizures.  

Clare lives in Boise, Idaho with her husband and three children. They enjoy all the fabulous recreational opportunities around them. Recently, Clare has started drum lessons, which has proved to be mentally stimulating and very therapeutic!

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