DSF Staff
Rich was born, raised, and currently resides in Enumclaw, WA. He has spent most of his career working in a local manufacturing plant programming welding robots and as an IT Analyst. He is married and has two boys, Owen and Zachary. Rich now spends most of his time troubleshooting and repairing off-road vehicles and buggies. …
Rich Maxey – Family & Caregiver Engagement Coordinator Read More »
As the Family Network Coordinator, Austin oversees the Family Ambassador and Brand Ambassador Programs, acts as a moderator for online support groups, organizes gatherings both digital and live, acts as liaison between families and DSF, and other duties to further the mission of DSF. Originally from Northwest Washington, Austin lives in Boise, Idaho with her …
Shannon lives in Smyrna, GA with her husband Blaine and their three children. Their oldest child, Alaina, had her first seizure at four months old and was diagnosed with Dravet syndrome in 2009 at age four. Shannon is originally from Pickerington, Ohio, and graduated from Florida State University in 1997 with a degree in Management …
Tatiana graduated from the University of Central Florida with a bachelor’s degree in Legal Studies and Criminal Justice. Her career in Social Work began working in the Juvenile Justice system assisting youth obtain services necessary for re-entry into the community to ensure success. In this role she focused on identifying resources needed in the education, …
Meredith has been an active part of the Dravet community since her daughter, Eden, was diagnosed with Dravet syndrome in 2016. The DSF has directly impacted her life by advocating for approval of medications that were removed from the marketplace and connecting her with other families who are fighting Dravet syndrome. Because of these efforts, …
After spending the last 20 years in the insurance industry, Karen signed on in early 2023 as an Administrative Assistant for DSF. Karen has been a volunteer Parent Ambassador for the West Region of the DSF Family Network since 2015 and helped to bring the Day of Dravet events to San Francisco, Seattle, and Los …
Karen Masters Foster – Administrative Assistant Read More »
As the Family Network Liaison, Erin oversees volunteers in both the Parent Ambassador and Social Media Ambassador programs. Erin and her husband Leo live outside of Seattle, WA, and are parents to Eloise and Leonel. Erin began fundraising for DSF soon after her Leonel’s Dravet syndrome diagnosis in 2016. She has been a volunteer Parent Ambassador …
Misty resides in South Carolina, with her husband Ben and their two children, Braxton and Allie. In 2009 her son, Braxton, was diagnosed with Dravet syndrome at just 15 months old. With very little information given to them by their neurologist, they immediately went online in search of other parents to help educate and guide …
Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica …
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