DSF Staff
Tatiana graduated from the University of Central Florida with a bachelor’s degree in Legal Studies and Criminal Justice. Her career in Social Work began working in the Juvenile Justice system assisting youth obtain services necessary for re-entry into the community to ensure success. In this role she focused on identifying resources needed in the education, …
Meredith has been an active part of the Dravet community since her daughter, Eden, was diagnosed with Dravet syndrome in 2016. The DSF has directly impacted her life by advocating for approval of medications that were removed from the marketplace and connecting her with other families who are fighting Dravet syndrome. Because of these efforts, …
After spending the last 20 years in the insurance industry, Karen signed on in early 2023 as an Administrative Assistant for DSF. Karen has been a volunteer Parent Ambassador for the West Region of the DSF Family Network since 2015 and helped to bring the Day of Dravet events to San Francisco, Seattle, and Los …
Karen Masters Foster – Administrative Assistant Read More »
As the Family Network Liaison, Erin oversees volunteers in both the Parent Ambassador and Social Media Ambassador programs. Erin and her husband Leo live outside of Seattle, WA, and are parents to Eloise and Leonel. Erin began fundraising for DSF soon after her Leonel’s Dravet syndrome diagnosis in 2016. She has been a volunteer Parent Ambassador …
Jenny was born and raised in a small town in Morris County NJ where she lives with her daughter Lena who has Dravet syndrome and autism and her partner Dennis. At 8/12 months old, Lena had her first tonic-clonic (grand mal) seizure which lasted 20-25 minutes which was not brought on by fever. Lena continued …
Misty resides in South Carolina, with her husband Ben and their two children, Braxton and Allie. In 2009 her son, Braxton, was diagnosed with Dravet syndrome at just 15 months old. With very little information given to them by their neurologist, they immediately went online in search of other parents to help educate and guide …
Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica …
Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. Prior to taking the position of Executive Director, she has owned and managed several small businesses in the private sector for over 25 years, with an emphasis on project management. This business experience …
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