DSF Staff

Cheyenne Wolf, a Central New Jersey native, brings a wealth of experience and a passion for non-profit development to her role as Development Coordinator. A graduate of Hightstown High School, Class of ’09, Cheyenne’s academic journey began when she was awarded the merit-based ‘NJ STARS’ scholarship, affording her studies at Mercer County Community College. In […]

Rich was born, raised, and currently resides in Enumclaw, WA. He has spent most of his career working in a local manufacturing plant programming welding robots and as an IT Analyst. He is married and has two boys, Owen and Zachary. Rich now spends most of his time troubleshooting and repairing off-road vehicles and buggies.

As the Family Network Coordinator, Austin oversees the Family Ambassador and Brand Ambassador Programs, acts as a moderator for online support groups, organizes gatherings both digital and live, acts as liaison between families and DSF, and other duties to further the mission of DSF. Originally from Northwest Washington, Austin lives in Boise, Idaho with her

Shannon lives in Smyrna, GA with her husband Blaine and their three children. Their oldest child, Alaina, had her first seizure at four months old and was diagnosed with Dravet syndrome in 2009 at age four. Shannon is originally from Pickerington, Ohio, and graduated from Florida State University in 1997 with a degree in Management

Tatiana graduated from the University of Central Florida with a bachelor’s degree in Legal Studies and Criminal Justice. Her career in Social Work began working in the Juvenile Justice system assisting youth obtain services necessary for re-entry into the community to ensure success. In this role she focused on identifying resources needed in the education,

After spending the last 20 years in the insurance industry, Karen signed on in early 2023 as an Administrative Assistant for DSF.  Karen has been a volunteer Parent Ambassador for the West Region of the DSF Family Network since 2015 and helped to bring the Day of Dravet events to San Francisco, Seattle, and Los

As the Family Network Liaison, Erin oversees volunteers in both the Parent Ambassador and Social Media Ambassador programs. Erin and her husband Leo live outside of Seattle, WA, and are parents to Eloise and Leonel. Erin began fundraising for DSF soon after her Leonel’s Dravet syndrome diagnosis in 2016. She has been a volunteer Parent Ambassador

Misty resides in South Carolina, with her husband Ben and their two children, Braxton and Allie. In 2009 her son, Braxton, was diagnosed with Dravet syndrome at just 15 months old. With very little information given to them by their neurologist, they immediately went online in search of other parents to help educate and guide