Shannon lives in Smyrna, GA with her husband Blaine and their three children. Their oldest child, Alaina, had her first seizure at four months old and was diagnosed with Dravet syndrome in 2009 at age four.
Shannon is originally from Pickerington, Ohio, and graduated from Florida State University in 1997 with a degree in Management Information Systems. After a 20 year career in IT consulting, she left the corporate world in 2018 to focus more on her family, advocacy, and helping others. She and her husband have been advocating for medical cannabis in Georgia since 2014 on behalf of Alaina and patients with other debilitating conditions. Through those efforts, she has learned how important it is for everyone to speak up when our loved ones aren’t getting what they need and how many small voices can make a big difference. She is excited to advocate on behalf of DSF and looks forward to helping other parents learn how to take part in advocacy efforts as well.
Shannon and her family have attended many DSF conferences and she has worked with other Atlanta area families since 2011 to host an annual walk to benefit DSF. She has been a part of the Parent Ambassador team since 2018 and is passionate about supporting other families and fighting to improve the lives of all children with Dravet syndrome.