DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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15 Years of Raising Awareness of Dravet Syndrome
June 7, 2024
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
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Dravet Syndrome Awareness Month 2024
May 31, 2024
This June, take action. Do your part (big or small) to give the Dravet syndrome community the recognition it deserves during Dravet Syndrome Awareness Month. ...
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Chat & Connect
May 24, 2024
DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask ...
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DSF-Funded Clinico-Genomics Research Study Now Recruiting for Remote Participants
May 17, 2024
At the end of 2023, DSF announced our largest-ever grant award in the amount of $1 million directed to Ingo Helbig, MD and Ethan Goldberg, ...
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Encoded Therapeutics begins enrolling first in-human trials for ETX101, a potential one-time, disease-modifying gene regulation therapy for SCN1A+ Dravet syndrome
May 10, 2024
2024 is proving to be a promising year for the advancement of targeted therapies for Dravet syndrome, including some newly enrolling clinical studies to investigate ...
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AI-Powered Progress: Transforming Epilepsy Care and Research with Technology
May 3, 2024
Artificial intelligence (AI) is the use of computer systems to perform complex tasks that would typically require a human to perform, such as visual perception, ...
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