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 15 Years of Raising Awareness of Dravet Syndrome

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
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Dravet Syndrome Awareness Month 2024

This June, take action. Do your part (big or small) to give the Dravet syndrome community the recognition it deserves during Dravet Syndrome Awareness Month.   ...
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Chat & Connect

DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask ...
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DSF-Funded Clinico-Genomics Research Study Now Recruiting for Remote Participants

At the end of 2023, DSF announced our largest-ever grant award in the amount of $1 million directed to Ingo Helbig, MD and Ethan Goldberg, ...
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Encoded Therapeutics begins enrolling first in-human trials for ETX101, a potential one-time, disease-modifying gene regulation therapy for SCN1A+ Dravet syndrome

2024 is proving to be a promising year for the advancement of targeted therapies for Dravet syndrome, including some newly enrolling clinical studies to investigate ...
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AI-Powered Progress: Transforming Epilepsy Care and Research with Technology

Artificial intelligence (AI) is the use of computer systems to perform complex tasks that would typically require a human to perform, such as visual perception, ...
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Berkley Dravet story

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Double Your Impact for Dravet Families!

Every gift to our Annual Campaign before December 31 will be matched, dollar-for-dollar, up to $30,000. Don’t miss this chance to make twice the difference for families living with Dravet syndrome!

Celebrating 15 years of DSF

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