- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
DSF is hiring!
A signal of our organization’s growth and success is our need to add two new staff members to our team. We are excited to announce …
Updated Professional Education Video Series
National Epilepsy Awareness Month in November is an annual event that teaches people about epilepsy’s causes and symptoms. During this month, many organizations join together …
Bereavement Resources
Bereavement is a part of life, but in the world of Dravet syndrome, it can be a looming presence. For anyone who has lost their …
Gobble, Gobble. Dash for Dravet is back!
Join our 7th annual Dash for Dravet on Thanksgiving Day! Before the feast, get your family and friends together for this virtual 5K (3.1 miles) …
Dravet Dads Meet-Up Informational Kickoff
It is no secret that mothers and female caregivers make up the majority of our Dravet Syndrome Foundation Parent and Caregiver Support Group. Our community …
Genetic Therapy for Dravet Syndrome: 2022 State of the Field
When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment …
DSF News & Notes - Past Newsletters
Join Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!
