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Voice of the Patient Report

Voice of the Patient report Missed our Externally-led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome on February 3, 2022? We are now working …

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Seizure Action Plan Awareness Week 2022

A seizure is a medical emergency. A Seizure Action Plan (SAP) incorporates tailored guidelines on how to respond during a seizure. It includes patient-specific information …

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two purple puzzle pieces connecting

Seizure Rescue Medications: The Options Continue to Expand

While attending the recent American Epilepsy Society Meeting in December, I had many discussions about seizure rescue medications that really exemplified to me how many …

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2022 DSF Conference Announcement

We are excited to announce the return of our in person biennial DSF Family & Professional Conference on June 23-25, 2022 at The Worthington Renaissance …

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ILAE Transition of Care Survey

The transition from pediatric to adult health care providers is incredibly challenging for individuals with complex medical needs. DSF strives to promote research and the …

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Parent Ambassadors

Apply to be a Parent Ambassador! In 2010, our Dravet Syndrome Foundation founding members established our first online support group. What started with roughly 100 …

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DSF News & Notes - Past Newsletters

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