DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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2024 DSF Annual Campaign
November 24, 2023
As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came ...
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What do DSF Family Network Ambassadors and Brand Ambassadors do?
November 17, 2023
Last week’s blog post was a brief overview about how the Family Network Ambassadors and the Brand Ambassadors function within our organization to help further ...
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DSF Family Network and Brand Ambassadors
November 10, 2023
When you are going through something hard it’s always good to know that there are people “in the same boat” as you are. And while ...
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DSF is designated an official “Give with Confidence” charity by Charity Navigator!
November 3, 2023
Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates ...
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Park City Epilepsy Meeting Recap
October 27, 2023
Last week, I had the opportunity to attend the 2023 Park City Epilepsy Meeting and an open house for the NIH/NINDS Epilepsy Therapy Screening Program ...
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What is a Turkey Trot and where did it start anyway?
October 20, 2023
In 1896, Buffalo, N.Y. hosted the first-ever Turkey Trot. Only six runners participated in this holiday race, and they ran five miles down dirt roads ...
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DSF News & Notes - Past Newsletters
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