Stay up to date on our Decoding Dravet Blog and Research & Community News

  • All
  • Community News & Programs
  • Decoding Dravet Blog
  • Research News

15 Years of Collaborative Partnerships

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
Read More →

Join DSF in Taking Steps Toward a Cure

Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! ...
Read More →

DSF Partners with Mason’s Movement

We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory ...
Read More →

DSF Galas & Evening Events this Fall!

It’s almost that time of year again. Time for leaves changing, cool breezes, pumpkin everything and you guessed it… DSF Gala and Benefit Evenings. STOP! ...
Read More →

Reflecting on Advancements in Gene Therapy for Dravet Syndrome

Dravet syndrome is a severe form of epilepsy that is primarily caused by mutations in the SCN1A gene, which encodes a sodium channel critical for ...
Read More →

Discontinuation of Studies and Manufacturing of Lorcaserin

Eisai recently communicated their decision to discontinue human trials and manufacturing of the experimental therapy, lorcaserin. The current Phase 3 trial has been discontinued and ...
Read More →
Berkley Dravet story

Join Our Mailing List

DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!

Scroll to Top
15 years of DSF campaign banner
Double Your Impact for Dravet Families!

Every gift to our Annual Campaign before December 31 will be matched, dollar-for-dollar, up to $30,000. Don’t miss this chance to make twice the difference for families living with Dravet syndrome!

Celebrating 15 years of DSF

Skip to content