The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity to bring the epilepsy community together to bring attention and awareness to Seizure Action Plans for people with epilepsy. The three organizations served as the Governing Organizations of the coalition through 2022.
The Governing Organizations transitioned into new roles with the Seizure Action Plan Coalition – that of Founding Organizations – as of December 31, 2022. Epilepsy Alliance America became the managing organization of the Seizure Action Plan Coalition on January 1, 2023. We are committed to continuing this important work and expanding the reach and impact of the Coalition.