Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the grandmother to a very special little three-year-old granddaughter, Cecilia, […]
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2021 DSF Grant Awardees DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We place a high priority on funding research that has a
AES 2021 Meeting Summary On December 3-7th, 2021, the American Epilepsy Society (AES) held its annual conference to bring together clinicians and scientists on the cutting edge of epilepsy research. This year had a multitude of presentations related to Dravet syndrome, making for an exciting few days focused on what we have learned about Dravet
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Meet The Odlaug, Nusslock and Brennan Families In this Community Spotlight, meet The Odlaug, Nusslock, and Brennan Families and join us in thanking and congratulating them on reaching their fundraising goal of $1 million for DSF! Andrew and Kimberly Odlaug blessed their family in September 2017 with the birth of Anna Grace. Anna was diagnosed
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Phase 1/2a MONARCH clinical trial of STK-001 update Stoke Therapeutics released interim safety, pharmacokinetic, and CSF exposure data from their Phase 1/2a MONARCH trial of STK-001 in individuals with Dravet syndrome. • The data in this analysis comes from 21 patients in the Single Ascending Dose arm of the study (SAD: 1 dose with a
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Partners Against Mortality in Epilepsy Memory Wall Partners Against Mortality in Epilepsy (PAME) is a collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to
Meet Lori Isom, PhD In this Researcher Spotlight meet DSF’s Scientific Advisory Board (SAB) Co-Chair, Lori Isom, PhD. As a SAB member, Lori reviews and approves all research grant applications and meets annually with other interested researchers and scientists to discuss innovative and promising research in the field of Dravet syndrome and associated epilepsies at
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2021 Day of Dravet Registration is Open Join the DSF Family Network for our 5th annual Day of Dravet workshops this October! DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a
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Steps Toward a Cure: Atlanta After having to make the tough decision to cancel all-in person events last year, we are excited to have finally had our first in-person event since February 22, 2020. On Saturday, October 16,11 Dravet families joined friends and family for Steps Toward A Cure: Atlanta. This 1 mile walk, held
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Dravet Syndrome Transition Guide Transition of care, or the process of moving from pediatric to adult health care providers, is one of the most challenging issues facing adults with Dravet syndrome and their families. DSF worked with our Medical Advisory Board to help address one of the issues that families with Dravet syndrome face during the
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