Community News & Programs

Community News & Programs

Seizure action plan awareness week

SAP Awareness Week

Do you have a Seizure Action Plan? A seizure is a medical emergency. A Seizure Action Plan (SAP) incorporates tailored guidelines on how to respond during a seizure. It includes patient-specific information that can assure quick and appropriate intervention. For patients with Dravet syndrome, a SAP is an important management tool. Its development should involve

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Scott Baraban PhD DSF Advisory Board

Researcher Spotlight

Meet Scott Baraban, PhD In this Researcher Spotlight meet DSF’s Scientific Advisory Board (MAB) member, Scott Baraban, PhD. Dr. Baraban studies Dravet syndrome using zebrafish, and his laboratory’s work has led to advancements in drug discovery and repurposing for Dravet syndrome. DSF funded Dr. Baraban’s zebrafish drug screens through our grants program in 2011, and currently, some

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Elaine Wirrell, MD Mayo Clinic DSF Advisory Board

Researcher Spotlight

Meet Elaine Wirrell, MD In this Researcher Spotlight meet DSF’s Medical Advisory Board (MAB) member, Elaine Wirrell, MD. Dr. Wirrell is passionate about improving the lives of children with epilepsy, appreciating the tremendous impact this condition has on the entire family, and the critical importance of addressing seizures and comorbidities. Last month, Dr. Wirrell was

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DSF Research Roundtable Event

Research Roundtable

12th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 12th annual Research Roundtable on December 2nd, 2021, the evening prior to the annual American Epilepsy Society (AES) Meeting. Following the 2020 virtual-only event, it felt electric to be gathered together in person to discuss advances in Dravet syndrome research. This annual

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Kendra R. Mulholland DNP, MSN, APRN CNP

Community Spotlight

Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the grandmother to a very special little three-year-old granddaughter, Cecilia,

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