Community News & Programs
Meet The Odlaug, Nusslock and Brennan Families In this Community Spotlight, meet The Odlaug, Nusslock, and Brennan Families and join us in thanking and congratulating them on reaching their fundraising goal of $1 million for DSF! Andrew and Kimberly Odlaug blessed their family in September 2017 with the birth of Anna Grace. Anna was diagnosed […]
Community Spotlight Read More »
Dravet Syndrome and Social Security Session: Presentation Outline Compassionate Allowance Information Listing 11.02 for Adults Listing 111.02 for Children How Social Security Evaluates Epilepsy under Listing 111.02 Helpful tips for Lay & Medical Statements Teacher Questionnaire Seizure Monitoring Devices Session: Presentation Slides
2021 Day of Dravet Materials Read More »
Meet Lori Isom, PhD In this Researcher Spotlight meet DSF’s Scientific Advisory Board (SAB) Co-Chair, Lori Isom, PhD. As a SAB member, Lori reviews and approves all research grant applications and meets annually with other interested researchers and scientists to discuss innovative and promising research in the field of Dravet syndrome and associated epilepsies at
Researcher Spotlight Read More »
2021 Day of Dravet Registration is Open Join the DSF Family Network for our 5th annual Day of Dravet workshops this October! DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a
Day of Dravet Registration Read More »
Steps Toward a Cure: Atlanta After having to make the tough decision to cancel all-in person events last year, we are excited to have finally had our first in-person event since February 22, 2020. On Saturday, October 16,11 Dravet families joined friends and family for Steps Toward A Cure: Atlanta. This 1 mile walk, held
In-Person Events Are Back Read More »
Newly Diagnosed Patient Kits When a family first receives a diagnosis of Dravet syndrome for their child, they may feel overwhelmed and unsure where to begin. Often your first instinct is to turn to the internet for more information. But with a rare disease such as Dravet syndrome, general information you may find can be
Newly Diagnosed Patient Kits Read More »
Dance for Dravet Join us for a night of fun & fundraising at Dance for Dravet in Honor of Anna. Taking place at Third Degree Glass Factory in St. Louis, Missouri, the evening includes appetizers, dinner, drinks, dancing, and silent and live auctions. Tickets are now on sale for $100 per person. Purchase your tickets
Dance for Dravet St. Louis Read More »
Training Photos 24 Hour World Time Trial Championship – Oct 2021
Training & Event Photos Read More »
Meet Dan Hartley, his daughter Bri, and McCall! In this Community Spotlight meet Dan Hartley and learn about his new multi-year fundrasising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having
Community Spotlight Read More »
Be seizure ready with the back to School Initiative! The Seizure Action Plan Coalition recently announced their 2021 Back to School initiatives! Watch the SAP Coalition Town Hall, ABC to SAP: Why Your Child Needs a Seizure Action Plan Webinar, and learn from an expert panel. You will hear about SAPs from a doctor’s point
Be Seizure Ready for Back to School Read More »
This website is made possible through educational grants from our partners. Partners did not have a role in developing content. The information you obtain at this site is not intended to be medical advice, please read our medical disclaimer. Thank you to:
© Copyright 2024 | Dravet Syndrome Foundation | All Rights Reserved
