Voice of the Patient report
Missed our Externally-led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome on February 3, 2022?
We are now working on our Voice of the Patient report, which will be developed based on the content of the meeting and sent to the FDA and housed on the DSF website. This will be a reference for future decisions about potential treatments for Dravet syndrome.
If you were unable to join for the meeting, you can still share your experience for inclusion in the report before March 4th by:
- Participate in our survey on Caregiver Opinions about Disease Modifying Therapies for Dravet Syndrome.
- Submit a comment for inclusion in the Voice of the Patient report.
Learn more or watch the recorded meeting here.