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Join the EL-PFDD Meeting

Particpate in the EL-PFDD on Dravet Syndrome Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome EL-PFDD meetings bring together patients and caregivers, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. DSF will be hosting a virtual EL-PFDD on Dravet syndrome on February 3, …

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Community Spotlight

Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the grandmother to a very special little three-year-old granddaughter, Cecilia, …

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Community Spotlight

Meet Dan Hartley, his daughter Bri, and McCall! In this Community Spotlight meet Dan Hartley and learn about his new multi-year fundrasising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having …

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Miles for McCall

We are excited to announce a new multi-year fundraising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having converted to competitive ultra-cycling in 2020, Dan has a full schedule of …

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