Vince Fayville – PA (Northeast)
Vince Faville- Pennsylvania (Northeast region) Vince and his wife Cindy live in Pennsylvania with their three children. Their youngest daughter, Adrianna, is diagnosed with Dravet syndrome.
DSF Parent Ambassadors
DSF Parent Ambassadors
Austin Watson – ID (West)
Austin’s son, Owen, was diagnosed with Dravet syndrome in November of 2014 at the age of 13 months. In the spring of 2015, she and her family attended an epilepsy conference in California. There they met Dr. Charlotte Dravet and veteran Dravet families. The love and advice the Watsons received from those families forged deep …
Melissa O’Bryan – AK (West)
Melissa is the proud mom of four boys. She and her husband, Jim make their home in Ketchikan, Alaska. Her son, Owen, was diagnosed with Dravet syndrome at the age of 3. She credits awareness and research through DSF and other rare disorders for their early diagnosis. Melissa is an active volunteer with the Epilepsy …
Richard Maxey – WA (West)
Richard was born, raised, and currently resides in Enumclaw, WA. He has spent most of his career working in a local manufacturing plant programming welding robots and as an IT Analyst. He is married and has two boys, Owen and Zachary. Richard now spends most of his time troubleshooting and repairing off-road vehicles and buggies. …
Colleen Murphy Penwell – WI (Midwest)
Colleen and her husband, David, live in Madison, Wisconsin and are proud parents to three adult children, one of whom lives with Dravet syndrome. Colleen’s education is in journalism and marketing. In her early career, she worked at public relations agencies in Minneapolis and Madison and had a small consulting firm. A consummate Jane-of-all-trades, her …
Tina McDermott – IA (Midwest)
Tina lives in Davenport, Iowa, and has a son, Ryan, with Dravet syndrome. She and her husband Brad have been married for 30 years and have been blessed with 5 sons, a daughter, and 4 grandchildren. Ryan is their youngest child who is now 16 and was diagnosed 10 years ago at the age of …
Jennifer Marasco-Kuhn – PA (Northeast)
Jennifer (Jen) is originally from Hollidaysburg, Pennsylvania and currently resides with her family in Verona, PA (near Pittsburgh). She and her husband Chris have been married since 2014 and have two beautiful daughters: Maggie, almost 5 and Coralyn (Cora), age 2, who has Dravet syndrome. Jen is a licensed geriatric social worker and has provided …
Kayci Capps – MO (Midwest)
Kayci is a stay- at- home mom to three amazing kids, Benjamin, William, and Charlotte. Her husband, Adam, is in the Air Force and they currently live near St. Louis, Missouri. Her middle son, William, was diagnosed with Dravet syndrome at 6 months old after having several seizures lasting from 50 minutes up to 3 …
Morgan Turpin – CA (West)
Morgan Turpin – California Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 10), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would take another ten months before he would officially receive a diagnosis of Dravet syndrome. …
Karen Masters Foster – WA (West)
Karen Masters Foster – California Karen lives in Northridge, CA with her husband Jermaine and their 4 children, Audrey, Miles, Clover, and Scarlet. Miles was 2 yrs old when genetic testing revealed he had an SCN1A mutation. Though initially diagnosed with GEFS+, at age 4 Miles was officially diagnosed with Dravet syndrome. From the beginning, Karen …