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Voice of the Patient Report
Voice of the Patient report Missed our Externally-led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome on February 3, 2022? We are now working ...
Seizure Action Plan Awareness Week 2022
A seizure is a medical emergency. A Seizure Action Plan (SAP) incorporates tailored guidelines on how to respond during a seizure. It includes patient-specific information ...
Seizure Rescue Medications: The Options Continue to Expand
The last several years have been an exciting time for the development of new options for seizure rescue medications. Some of the biggest advancements have ...
2022 DSF Conference Announcement
We are excited to announce the return of our in person biennial DSF Family & Professional Conference on June 23-25, 2022 at The Worthington Renaissance ...
ILAE Transition of Care Survey
The transition from pediatric to adult health care providers is incredibly challenging for individuals with complex medical needs. DSF strives to promote research and the ...
Parent Ambassadors
Apply to be a Parent Ambassador! In 2010, our Dravet Syndrome Foundation founding members established our first online support group. What started with roughly 100 ...
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