The New DSF Website is Here!

Every family’s Dravet syndrome journey is unique, which is why we updated our website today to best serve our community, meeting each individual where they are on their family’s medical journey. Whether you’re navigating a new diagnosis or well-acquainted with Dravet syndrome, we’ve made sure that we’re here for you every step of the way.

So let us show you just a few of the new website features.

Our community speaks more than one language, which is why we’ve made it easy to toggle to your preferred language at the top of our website using the “Select Language” pulldown menu. We’ve added accessibility features, such as automatic font size increase, which you can access by clicking the purple person icon in the top right corner.

We’ve made our content easier to navigate so you can find the resources you need, including a consolidated news page and a streamlined educational video directory. We’ve also updated the international treatment consensus, which guides doctors around the world on Dravet syndrome treatment options. Moreover, there are more ways to search for doctors and critical care centers or find clinical trials. Plus, there are 19 new Dravet syndrome stories so you can learn from other community members.

These are just a few of the things you’ll see when you click over to explore the new site. 

Our families are the heart of our foundation, and this website update is our way of digitally saying we are here for you. If you have questions, comments, or want to let us know your thoughts on the site, we’d love to hear your feedback. Email us at to let us know how we can keep meeting our unique community’s needs.

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