When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment approaches. Despite the known genetic cause for the majority of cases, mutations in SCN1A, the idea of a genetic-based therapy seemed a distant possibility at that time. Things have changed …
Genetic Therapy for Dravet Syndrome: 2022 State of the Field Read More »
McCall was born August 28, 2018- perfectly healthy, without any complications. Four of the sweetest months later, still nestled in her car seat at her well check appointment, her arm began to rhythmically bounce up from her lap and fall back down. Her pediatrician immediately, but charily, slipped out of the room to call the …
GUEST NAME TABLE # 1 1 2 2 3 3 44 4 5 5 6 6 7 7 8 8 9 9 10 10 11 11 12 12 13 13 14 14 Column 1 Value 15 15 Column 1 Value 16 16 Column 1 Value 17 17 Column 1 Value 18 18 Column 1 Value …
TABLE SPONSOR TABLE # 1 1 2 2 3 3 44 4 5 5 6 6 7 7 8 8 9 9 10 10 11 11 12 12 13 13 14 14 Column 1 Value 15 15 Column 1 Value 16 16 Column 1 Value 17 17 Column 1 Value 18 18 Column 1 Value …
The American Brain Coalition (ABC) is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, they seek to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public education and advocacy. With an established presence in …
© Copyright 2023 | Dravet Syndrome Foundation | All Rights Reserved
