DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask questions of DSF and its staff. We know that exposure to stories, insights, and information sharing is particularly helpful when you are caring for someone with Dravet syndrome. Chat & […]
Amanda lives in Ocean City, Maryland with her husband and two children, Mason and Abigail. She works as a Physician Assistant in Primary Care and Emergency Medicine and is looking forward to using her experience as both a healthcare provider and Dravet parent during her time on the board. Amanda was thrown into the Dravet
Amanda Prather, PA-C Read More »
Gloria was born in Houston, Texas and grew up in South Houston. She graduated from Pasadena High School and while working with the public as a civil servant, she earned a Bachelor of Science degree in Psychology from the University of Houston – Clear Lake. In 2023, she received a Master of Science in Health
Gloria Rodriguez – Health Equity Coordinator Read More »
Tell us about yourself and the Dravet patient in your life My name is Mariam, mother to a Dravet syndrome patient. Close to Lake Victoria, in Kenya, a strong and brave little boy known as Teko-was born a healthy boy, very handsome and sweet. Teko loved to sing and could imitate his father singing and
Tell us about yourself and the Dravet patient in your life Our family of four lives in the small but mighty town of Pitman, located in south Jersey. However, our Dravet journey began in Boston. After meeting in college in North Carolina, my husband Adam and I moved to Adam’s hometown in Massachusetts where we
Tell us about yourself and the Dravet patient in your life? We live in Wisconsin and are a family of four that consists of mom, dad, Bauer and his younger brother Bryden. We enjoy bike riding, boating, fishing and swimming. When did the patient’s seizures begin? Bauer’s seizures began at 3 months old. They started
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
15 Years of Connecting & Supporting Families Read More »
Tell us about yourself and the Dravet Patient in your life My family and I live in Crossville, Tennessee. We love spending every day with our little warrior and watching his favorite movie, Toy Story. When did the patients seizures begin? Bentley’s first seizure was when he was 4 months old. It was a short
I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors. From our humble beginnings, the focus of DSF has remained steadfast – advancing our collective understanding of Dravet syndrome, providing support and advocacy, securing new treatments, and tirelessly working towards finding
2023 Annual Report Read More »
The 2024 DSF Family & Professional Conference will take place from June 20-22 at the JW Marriott Minneapolis Mall of America, just 2.5 miles from the Minneapolis-St Paul International Airport. This 3-day event is crafted to bring together all stakeholders dedicated to enhancing the quality of life for individuals with Dravet syndrome – including families,
DSF Conference Scholarships Read More »
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