At this year’s conference, we honored five individuals whose dedication and active participation in our mission are helping to drive advancements in the field of Dravet syndrome. Continue reading to discover more about this year’s recipients and the impact they are making for the Dravet syndrome community. Impact & Legacy Award – Theron (Ted) Odlaug, […]
2024 DSF Community Awards Read More »
Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are once again recognizing those that we have lost on our 4th annual Remembrance Day on June 15, 2024. Dravet Remembrance Day is a time for our community to reflect
Remembrance Day – June 15th Read More »
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
15 Years of Raising Awareness of Dravet Syndrome Read More »
This June, take action. Do your part (big or small) to give the Dravet syndrome community the recognition it deserves during Dravet Syndrome Awareness Month. Like & Share our Posts: Get connected with us on our social media channels so you can like and share our posts throughout June. Spread Awareness on Social Media: This
Dravet Syndrome Awareness Month 2024 Read More »
A proclamation is an official designation of an event and can be a great way to educate the public about a specific issue or bring attention to a cause. A proclamation is an effective tool for gaining public recognition of your event because it carries the full support of a key government official in your
Proclamation Request Example Read More »
DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask questions of DSF and its staff. We know that exposure to stories, insights, and information sharing is particularly helpful when you are caring for someone with Dravet syndrome. Chat &
Amanda lives in Ocean City, Maryland with her husband and two children, Mason and Abigail. She works as a Physician Assistant in Primary Care and Emergency Medicine and is looking forward to using her experience as both a healthcare provider and Dravet parent during her time on the board. Amanda was thrown into the Dravet
Amanda Prather, PA-C Read More »
Gloria was born in Houston, Texas and grew up in South Houston. She graduated from Pasadena High School and while working with the public as a civil servant, she earned a Bachelor of Science degree in Psychology from the University of Houston – Clear Lake. In 2023, she received a Master of Science in Health
Gloria Rodriguez – Health Equity Coordinator Read More »
Tell us about yourself and the Dravet patient in your life My name is Mariam, mother to a Dravet syndrome patient. Close to Lake Victoria, in Kenya, a strong and brave little boy known as Teko-was born a healthy boy, very handsome and sweet. Teko loved to sing and could imitate his father singing and
Tell us about yourself and the Dravet patient in your life Our family of four lives in the small but mighty town of Pitman, located in south Jersey. However, our Dravet journey began in Boston. After meeting in college in North Carolina, my husband Adam and I moved to Adam’s hometown in Massachusetts where we
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