At the end of each year, I, along with our Board of Directors, conducts a comprehensive review of our strategic priorities for the upcoming year, ensuring they are in alignment with our long-term goals outlined in our current 5-year Strategic Plan. This review includes assessing current progress, identifying key challenges, and determining new objectives that […]
2025: New Year, New Opportunities Read More »
This year there has been remarkable for progress and impact in the field of Dravet syndrome – a fantastic way to mark DSF’s 15th anniversary! Thanks to the collective dedication of our community and the generosity of our supporters, we have several major accomplishments to celebrate in 2024: We hosted our 6th DSF Family &
The Year in Review and Looking Ahead to 2025 Read More »
Tell us about yourself and the Dravet patient in your life I am one of the founding members of the Dravet Syndrome Foundation (DSF) and have had the privilege of serving as the Executive Director since 2012. This cause is deeply personal to me, as my youngest son, Elliot, is living with Dravet syndrome. Although
The Elliot Meskis Award for an Exceptional Postdoctoral Fellow honors the achievements and potential of remarkable postdocs specializing in Dravet syndrome. Recipients are awarded $2,500 to support their career advancement. This annual award is presented as part of the DSF Research Grant cycle, granted to one of the postdoctoral fellowships selected as awardees for that
Elliot Meskis Award for an Exceptional Postdoctoral Fellow Read More »
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
15 Years of Impact Read More »
I wanted to take the opportunity to express my heartfelt gratitude to our Finance and Program Director, Jamie Cohen, as she celebrates her 10-year anniversary with DSF on November 10, 2024. This milestone is a testament to her dedication, hard work, and unwavering commitment to our team, our community, and our mission. Jamie first joined
Thank you Jamie, for 10 years of dedication! Read More »
Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. It’s natural to experience concern or anxiety as you plan for their future. Recently, DSF had the opportunity to work with UCB, along with the LGS Foundation, TSC Alliance, and
C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy Read More »
Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the community for Dravet Syndrome Awareness Month in June, and a second to raise awareness for Epilepsy Awareness Month in November. This year we are excited to debut a design celebrating
Order your DSF 15th Anniversary T-Shirt! Read More »
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
15 Years of Collaborative Partnerships Read More »
Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! DSF Steps Toward a Cure is a series of family-friendly events that raise awareness and funds while celebrating our Dravet superheroes. These events take place throughout the year, primarily
Join DSF in Taking Steps Toward a Cure Read More »
