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Dravet Stories

Dravet Stories

Cora

Tell us about yourself and the Dravet patient in your lifeThis is Cora. She is a 2 year old sweet and sassy little lady. She is a pandemic baby! She has an older sister named Maggie. Her mommy is Jen and daddy is Chris. She has a pet dog named Lager and a fish named …

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Jacob

Tell us about yourself and the Dravet patient in your life Hello, This Is Jacob Dean. Jacob lives with his mother & step dad. We are from NE Ohio. He is going to be 11 years old August 2022. Jacob really enjoys skateboarding, he doesnt know how to push, but he can ride & hold …

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Sophia

Tell us about yourself and the Dravet patient in your lifeI’m a single mom to my beautiful 11 year old daughter Sophia. We currently live in Aurora, CO. We love singing, dancing, reading books, cooking, and painting together. Other favorites of Sophia are bowling, riding her tricycle, playing board games, and going to school. When …

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Musa

Tell us about yourself and the Dravet patient in your lifeMusa is a happy baby, loves to explore and eat almost everything. He has 3 older siblings that love him so much! He loves the water and to be outside. We live in Dallas, TX! When did the patient’s seizures begin?Seizures started at 4 months …

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Tayla-Mai

Tell us about yourself and the Dravet patient in your lifeWe live in Warton, Preston Lancashire, Tayla-mai has two older siblings, we enjoy going on dog walks and playing football in the garden. When did the patient’s seizures begin?Tayla-mai had a chest infection when she was 6 months old, I’d put her down for a …

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Jeremiah

Tell us about yourself and the Dravet patient in your lifeWe live in Colorado and it gives us great joy to see Jeremiah run around and make sweet troubles. Happy to see him live his little yet hugely important life. He is so different as far as his diagnosed Dravet Syndrome and his awesome little …

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Jo Jo

Tell us about yourself and the Dravet patient in your lifeWe are from Cincinnati, Jo Jo is currently 12. We love to attend events from A kid again, we live each day the best we can. When did the patient’s seizures begin?Jo started having seizures at 4 months old, seizures continued to increase and get …

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Travis

Tell us about yourself and the Dravet patient in your lifeTravis, our warrior, is 3 year-old. He is a fraternal twin. He also has a 4 year-old brother. We live in Paradise Valley, AZ. We love spending time as a family; going swimming, visiting grandparents, going on walks, having get-togethers at our home, etc. Our …

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Londyn

Tell us about yourself and the Dravet patient in your lifeWe are from a small town in Pennsylvania. Londyn had a brother who is 7 and the biggest help when it comes to londyn and dravet. We love being outside but with londyn being tempsture sensitive that is hard to do for more then 30 …

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