As we embark on a new year, I encourage you to make the most of your involvement with DSF by exploring the various programs and engagement opportunities available in 2025.
Remember our tagline: Community. Research. Progress. DSF offers something for everyone in our community, providing plenty of ways to get involved and make a difference!
Community
The work we do is fueled by our community through their participation in advocacy, educational, and fundraising events. We have a lot of great opportunities this year for you to get involved:
- Day of Dravet Workshops – Learn and connect at a workshop near you! It’s an opportunity for caregivers, families, and experts to come together, share resources, and inspire hope. This year, we’re thrilled to introduce a family dinner and fun event on Sunday at select locations.
- Steps Toward a Cure – Host or join a Steps Toward a Cure event and make a meaningful impact! These events are a powerful way to raise awareness, connect with others in your community, and support critical research efforts. Every step you take helps bring us closer to breakthroughs in treatment and care.
- Galas & Benefits – Join us by attending or organizing a gala or benefit in support of DSF! While planning may feel overwhelming, you’re never alone—our dedicated team is ready to offer the guidance, tools, and resources you need to ensure your event is a success. Together, we can host a memorable experience that not only raises awareness about Dravet syndrome but also inspires and unites your community.
- Awareness Month – June is Dravet Syndrome Awareness Month! Mark your calendars and bookmark this page to stay updated on what we have planned for 2025. Discover ways you can get involved, spread awareness, and make a difference for the Dravet syndrome community. Together, we can shine a light on this important cause!
- Chat & Connect – These virtual monthly sessions provide a welcoming and supportive space where you can connect with others, share your experiences, ask questions, and stay informed about the latest updates.
Research
Research is not only led by experts but also relies on the active participation of our patient community. This collaboration enables the DSF to advance research and make meaningful progress. The firsthand experiences and insights of patients are essential for steering research toward relevant and impactful solutions. To further these efforts, we encourage patients to actively participate in current clinical trials, which are vital for the development of new treatments. Together, through the combined efforts of researchers, industry, and our patient community, we are creating a brighter future for patients.
Progress
The more frequency and strength of our efforts, the greater the progress we drive forward. Every action, no matter how small, contributes to raising awareness, advancing research, and providing hope for the Dravet syndrome community. By consistently working together as a community—advocating, educating, and supporting—we are creating meaningful change. Each step brings us closer to breakthroughs that improve lives and pave the way for a brighter future.
Let’s keep the momentum going in 2025 and continue driving progress, one effort at a time!