Josh lives in the Boston area with his wife Stephanie and two young children. His family has been personally touched by Dravet syndrome and the tremendous challenges faced by patients and their families. Josh has also witnessed the incredible progress that DSF is making in terms of research and patient outreach. Josh joined the DSF […]
Josh Goldman – Treasurer Read More »
Ross lives in Atlanta, GA with his wife Polly and their three children Millie, Finn, and Henry – who has Dravet syndrome. Henry was diagnosed in March 2008. He had his first seizure at 3 months, lasting over an hour. By his second birthday, Henry had spent over 70 days in the hospital: often in
Ross Nicholas – Chair Read More »
Ted lives in Bannockburn, Illinois with his wife Pat. They have three adult children. They have four grandchildren, and their 2nd, Anna. was diagnosed with Dravet syndrome in 2018. Ted has been in leadership roles at both large and small companies in the pharmaceutical and biotechnology industries over the last 40 years. Dr. Ted earned
Ted Odlaug, PhD – Chair Read More »
Kate’s daughter Morgan was diagnosed with Dravet syndrome at only 6 months old. Although they received an early diagnosis, Morgan was medically fragile for the first 2 years of life; suffering frequent seizures and related medical complications. Her family turned to organizations like the Dravet Syndrome Foundation for guidance and support. The outreach and leadership
Kate Hintz – President Read More »
As the Family Network Liaison, Erin oversees volunteers in both the Parent Ambassador and Social Media Ambassador programs. Erin and her husband Leo live outside of Seattle, WA, and are parents to Eloise and Leonel. Erin began fundraising for DSF soon after her Leonel’s Dravet syndrome diagnosis in 2016. She has been a volunteer Parent Ambassador
Erin Reoyo – Family Network Liaison Read More »
Misty resides in South Carolina, with her husband Ben and their two children, Braxton and Allie. In 2009 her son, Braxton, was diagnosed with Dravet syndrome at just 15 months old. With very little information given to them by their neurologist, they immediately went online in search of other parents to help educate and guide
Misty Ried – Campaign Director Read More »
Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica
Veronica Hood, PhD – Chief Scientific Officer Read More »
Mary Anne was a founding member of the Dravet Syndrome Foundation (DSF) in 2009 and has served as the CEO since 2012. Before shifting her focus towards advocacy, she owned and managed several businesses in the private sector for over 25 years, with an emphasis on project management. Her professional background, combined with her personal
Mary Anne Meskis – Chief Executive Officer Read More »
Sarah Weckhuysen, MD, PhD – University of Antwerp in Belgium Sarah Weckhuysen, MD, PhD is an Associate Professor at the University of Antwerp, Belgium, with expertise in clinical epileptology and genetic research. A neurologist by training, she has worked at several renowned epilepsy centers, including the Epilepsy Center Kempenhaeghe (Netherlands), Hôpital Pitié Salpêtrière (Paris, France), and
Sarah Weckhuysen, MD, PhD Read More »
