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Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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ethan goldberg md

Ethan Goldberg, MD, PhD

Ethan Goldberg, MD, PhD – Children’s Hospital of Philadelphia Ethan M. Goldberg, M.D., Ph.D., is a pediatric neurologist and neurogeneticist in the Division ofNeurology at Children’s Hospital of Philadelphia (CHOP) and Departments of Neurology,Neuroscience, and Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. He is Director of the Epilepsy Neurogenetics Initiative […]

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Scott Baraban PhD DSF Advisory Board

Scott Baraban, PhD

Scott Baraban, PhD – University of California San Francisco Scott C. Baraban, PhD is a Professor of Neurological Surgery and William K. Bowes Jr. Endowed Chair in Neuroscience Research at the University of California, San Francisco. Dr. Baraban’s lab studies the cellular and molecular basis of epilepsy, specifically catastrophic epilepsies of childhood. While some seizures can

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Lori Isom 2019 e1651070407187

Lori Isom, PhD

Lori Isom, PhD – Board Co-Chair University of Michigan Medical Center Dr. Isom is the Maurice H. Seevers Professor and Chair of the Department of Pharmacology, Professor of Molecular and Integrative Physiology, and Professor of Neurology, and Faculty Chair for Women’s Careers at the University of Michigan Medical School. Prior to becoming Chair of Pharmacology

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Jack Parent, MD Board Co-Chair University of Michigan

Jack Parent, MD

Jack Parent, MD – Board Co-Chair University of Michigan Medical Center Jack M. Parent, MD, is the William J. Herdman Professor of Neurology and Research Professor of the Michigan Neuroscience Institute at the University of Michigan. Dr. Parent received an M.D. from Yale University and completed neurology residency, clinical fellowship and postdoctoral research fellowship training

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Joe Sullivan MD DSF Board Member

Joseph Sullivan, MD

Joseph Sullivan, MD University of California San Francisco Dr. Joseph Sullivan, is a Professor of Neurology & Pediatrics and Director of the UCSF Pediatric Epilepsy Center of Excellence, where he specializes in the evaluation and treatment of children with epilepsy, in particular the treatment of refractory epilepsy that does not respond to medications. He also

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Ingrid Scheffer, AO MB BS PhD FRACP FAHMS FAA University of Melbourne

Ingrid Scheffer, AO MB BS PhD FRACP FAHMS FAA

Ingrid Scheffer, AO MB BS PhD FRACP FAHMS FAA University of Melbourne Laureate Professor Ingrid Scheffer’s work has resulted in a major paradigm shift in our understanding of the epilepsies, highlighting the importance of genetic causes. Her work on epilepsy syndromes and classification over thirty years has framed clinical practice. Her collaborative group discovered the

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