Jamie Cohen, CPA – Chief Financial Officer
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Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica
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Mary Anne was a founding member of the Dravet Syndrome Foundation (DSF) in 2009 and has served as the Executive Director since 2012. Before shifting her focus towards advocacy, she owned and managed several businesses in the private sector for over 25 years, with an emphasis on project management. Her professional background, combined with her
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Sarah Weckhuysen, MD, PhD – University of Antwerp in Belgium Sarah Weckhuysen, MD, PhD is an Associate Professor at the University of Antwerp, Belgium, with expertise in clinical epileptology and genetic research. A neurologist by training, she has worked at several renowned epilepsy centers, including the Epilepsy Center Kempenhaeghe (Netherlands), Hôpital Pitié Salpêtrière (Paris, France), and
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Miriam Meisler, PhD – University of Michigan Medical Center Dr. Meisler is the Myron Levine Distinguished University Professor, Professor of Human Genetics and Professor of Neurology at the University of Michigan Medical School. She earned her PhD at The Ohio State University in Physiological Chemistry and carried out postdoctoral training funded by a NSF Postdoctoral
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Heather C. Mefford, MD, PhD – St. Jude’s Research Hospital Dr. Mefford is a physician scientist with training in pediatrics and human genetics. She works for the Center for Pediatric Neurological Disease Research at St. Jude Children’s Research Hospital, and has a research laboratory devoted to the discovery of novel genetic and genomic causes of pediatric
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Jennifer Kearney, PhD – Northwestern University Jennifer Kearney, PhD, associate professor of Pharmacology, focuses her research on studying the genetic modifiers that influence the clinical severity of epilepsy. She received her Ph.D. in Neuroscience from The University of Michigan in 1997. She remained at The University of Michigan for postdoctoral training in Genetics and joined the faculty
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Ethan Goldberg, MD, PhD – Children’s Hospital of Philadelphia Ethan M. Goldberg, M.D., Ph.D., is a pediatric neurologist and neurogeneticist in the Division ofNeurology at Children’s Hospital of Philadelphia (CHOP) and Departments of Neurology,Neuroscience, and Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. He is Director of the Epilepsy Neurogenetics Initiative
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Dennis J. Dlugos, MD, MSCE, is Professor of Neurology and Pediatrics at Children’s Hospital of Philadelphia (CHOP) and the Perelman School of Medicine (PSOM) at the University of Pennsylvania. He is Director of the Epilepsy Program at CHOP, holds the Tristram C. Colket, Jr. Endowed Chair in Pediatric Neurology, and is Associate Dean for the
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Scott Baraban, PhD – University of California San Francisco Scott C. Baraban, PhD is a Professor of Neurological Surgery and William K. Bowes Jr. Endowed Chair in Neuroscience Research at the University of California, San Francisco. Dr. Baraban’s lab studies the cellular and molecular basis of epilepsy, specifically catastrophic epilepsies of childhood. While some seizures can
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