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Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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Sarah Weckhuysen, MD, PhD University of Antwerp in Belgium DSF Advisory Board

Sarah Weckhuysen, MD, PhD

Sarah Weckhuysen, MD, PhD – University of Antwerp in Belgium Sarah Weckhuysen, MD, PhD is an Associate Professor at the University of Antwerp, Belgium, with expertise in clinical epileptology and genetic research. A neurologist by training, she has worked at several renowned epilepsy centers, including the Epilepsy Center Kempenhaeghe (Netherlands), Hôpital Pitié Salpêtrière (Paris, France), and

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Miriam Meisler, PhD

Miriam Meisler, PhD – University of Michigan Medical Center Dr. Meisler is the Myron Levine Distinguished University Professor, Professor of Human Genetics and Professor of Neurology at the University of Michigan Medical School. She earned her PhD at The Ohio State University in Physiological Chemistry and carried out postdoctoral training funded by a NSF Postdoctoral

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Jennifer Kearney, PhD

Jennifer Kearney, PhD – Northwestern University Jennifer Kearney, PhD, associate professor of Pharmacology, focuses her research on studying the genetic modifiers that influence the clinical severity of epilepsy. She received her Ph.D. in Neuroscience from The University of Michigan in 1997. She remained at The University of Michigan for postdoctoral training in Genetics and joined the faculty

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ethan goldberg md

Ethan Goldberg, MD, PhD

Ethan Goldberg, MD, PhD – Children’s Hospital of Philadelphia Ethan M. Goldberg, M.D., Ph.D., is a pediatric neurologist and neurogeneticist in the Division ofNeurology at Children’s Hospital of Philadelphia (CHOP) and Departments of Neurology,Neuroscience, and Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. He is Director of the Epilepsy Neurogenetics Initiative

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Scott Baraban PhD DSF Advisory Board

Scott Baraban, PhD

Scott Baraban, PhD – University of California San Francisco Scott C. Baraban, PhD is a Professor of Neurological Surgery and William K. Bowes Jr. Endowed Chair in Neuroscience Research at the University of California, San Francisco. Dr. Baraban’s lab studies the cellular and molecular basis of epilepsy, specifically catastrophic epilepsies of childhood. While some seizures can

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