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Tara

Tell us about yourself and the Dravet patient in your life

Tara loves visiting animals, shooting hoops with a basketball, going to the beach, eating eggplant parmesan and giving hugs and kisses.

When did the patient’s seizures begin?

Tara’s first seizure occurred at 6 months old and continued through approximately age 18 (seizures are fairly well controlled now). The years of taking Tara to many doctor’s visits and managing her seizures has been extremely stressful, but Tara seems happy and enjoying life. Tara has been living in a group home since she turned 22 last Oct. 2021. We pray that she continues to do well there.

What is your hope for the future of your loved one? For the Dravet community?

Tara has been living in a group home since she turned 22 last Oct. We pray that she continues to do well there.

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