As a caregiver for a child or adult with Dravet syndrome, it is normal to have feelings of anger, depression, and resentment. The emotional role of caregiving is stressful and can be overwhelming. Caregiver burnout is real, so it is important to find emotional support and the resources you need to prioritize your mental health […]
Caregiver Connect – DSF’s Newest Resource Read More »
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families. Our dedicated board members serve as fiduciaries and play a vital role in ensuring DSF has a sustainable future by adopting
Thank you to our Departing Board President and Welcome to our New Board Member Read More »
Brad has over 20 years of experience leading and building global drug development and medical affairs teams focused in pain and epilepsy, Currently he is Chief Medical Officer at Rapport Therapeutics. Prior he was Executive Vice President and Chief Medical Officer at Zogenix, President of the Pain Group at Nuvo Research, and Senior Medical Officer
Brad Galer, MD – Board Member Read More »
We are pleased to announce that the 2024 DSF Biennial Family & Professional Conference will be held next year in Minneapolis, Minnesota, on June 20-22. The conference and associated activities will be held at the JW Marriott hotel, which is connected to the Mall of America. Our 6th biennial conference will bring patient families, clinicians,
Mark Your Calendar for our 2024 Conference! Read More »
Right click to save any of the images below for use in promoting this year’s Give Up Your Cup!
2025 Give Up Your Cup Social Media Images Read More »
The heart of DSF is our patient community. We exist to push research forward in the field of Dravet syndrome and to offer support and advocacy for our patient families. To assure that our community never feels alone on this medical journey, we offer several free programs to connect and support our patient families. Click
Programs for our Patient Community Read More »
Three simple words make up DSF’s new tagline: Community. Research. Progress. We believe our new tagline is an external expression of our purpose and all that DSF has accomplished. Because rare diseases, such as Dravet syndrome, affect a small number of people relative to diseases such as cancer or diabetes, they are often considered lower
Community. Research. Progress. Read More »
Annually, the DSF Board of Directors, with input from the staff, decides on priorities and objectives for the year ahead. These strategies are designed with the needs of DSF and the Dravet syndrome community in mind. We feel that 2023 will be a pivotal year for DSF in our growth and development and I am
What to watch for from DSF in 2023 Read More »
Do you own a business or work for a national company that would benefit from national attention, while supporting the Dravet syndrome community? Corporate donations to nonprofit organizations such as DSF provide companies with a way to give back to the community, engage their employees, and improve brand perception. There are many ways that a
Use Your Connections to Help DSF! Read More »
DSF started as a small, volunteer-led group in 2009 and has grown into a professional organization that serves patient families, healthcare professionals, researchers, industry partners, and other stakeholders in the Dravet syndrome community. In addition to offering resources, education, and support to patient families, we are the largest non-governmental funder of Dravet syndrome-specific research and
Join us in welcoming our new staff members! Read More »
