2023 Day of Dravet: Northeast – Agenda

Time Session Speaker
10:00am-10:30am Registration & Breakfast
10:30am-10:35am Welcome Mary Anne Meskis - DSF Executive Director
10:35am-10:50am DSF Programs & Initiatives for Families Jamie Cohen, CPA - DSF Finance & Program Director
10:50am-11:00am Family Introductions
11:00am-11:45am Overview of Dravet Syndrome Veronica Hood, PhD - DSF Scientific Director (remote)
11:45pm-12:15pm Valtoco to the Rescue Steven Wolf, MD
12:15pm-12:30pm Sibling Camp Update Laurie Bailey, UCB
12:30pm-1:30pm Lunch
1:30pm-2:00pm From Awareness to Advocacy Shannon Cloud - DSF Patient Advocacy Director
2:00pm-3:45pm Connect & Create - Breakouts for Patient Families
3:45-4:00pm Wrap Up
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