June is Dravet Syndrome Awareness Month in the U.S. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. We are just a few days away from this year’s awareness month and we need your help!
This year’s theme for awareness month is DSF’s new tagline: Community. Research. Progress.
Want to help raise awareness? There are a variety of ways to participate:
- Register for our Dye it for Dravet fundraising challenge this June, then dye your hair, beard or mustache purple and show everyone your commitment to DSF’s fight for a cure! Registration is FREE and donations are 100% tax deductible. Raise $500 or more and earn $50 Dravet Dollars that can be used in our online store.
- Join us on Facebook for Dravet Remembrance Day on June 15th for a video tribute at 12pm ET. Our 3rd annual remembrance day is a time for our community to reflect and remember those who we have lost to Dravet syndrome. If you would like to include someone on our remembrance wall, you can submit their information here.
- On Dravet Syndrome Awareness Day, on June 23rd, we are joining advocacy partners and families from around the world in raising awareness of Dravet syndrome. Consider sharing your loved one’s story and why you are involved with DSF or host a local awareness event.
- Follow DSF on all of our social media channels, then be sure to like and share our daily posts to help raise awareness throughout June. Or tag us in your posts sharing how you are spreading awareness!
- Wear your DSF merchandise throughout the month! Don’t have any DSF swag? Be sure to visit our online store for a wide variety of clothing and accessories.
Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help. Please commit to raise public awareness of Dravet syndrome in one or more ways this June!