June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. This year, we are recognizing those that we have lost on our first annual Remembrance Day, June 15th.
By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is: Join the Fight!
We encourage you each to start thinking ahead about some of the ways you can help DSF’s efforts this June to spread the word about Dravet syndrome and the needs of our community.
- DRAVET AWARENESS T-SHIRT CAMPAIGN
Thank you to those who supported our annual Dravet Awareness t-shirt campaign. Orders will arrive shortly. We hope you will share your photos with us on social media of you supporting your Join the Fight apparel.
- REMEMBERANCE DAY
Our 1st annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall.
- START A FUNDRAISER
Set up a personal fundraiser page for free, and raise $415 or more to get your free swag bag and t-shirt.
- SOCIAL MEDIA SHARES
Throughout the month of June, DSF will be sharing posts about DS on all of our social media channels. We encourage you to share these posts or consider telling your own story about living with DS.
- FACEBOOK FRAMES
Use our Facebook Frames to help raise awareness of Dravet syndrome and show that you are in the fight! Click here for this year’s designs and links to add a frame to your Facebook profile.
- SHARE YOUR SUPPORT
Print off one of our Dravet Awareness Month signs, share a photo of yourself or your family with the sign on social media to show that you are ready to #fightdravet
As you know, DSF is a passionate group of parents, supporters, medical professionals, and researchers who are working tirelessly to push science forward and create a better life for those living with Dravet syndrome. We cannot thank each of you enough for your ongoing support and the role you play in our success. Because of you, we continue to raise awareness, support research, and advocate for our patient community. Your generosity will help to create a better life for those living with Dravet syndrome.