DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal Approaches
December 5, 2025
Ulrike Hedrich-Klimosch, PhD- University of Tuebingen Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal ApproachesResearch Grant- $248,901 over 2 years Summary from the ...
Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal function
December 5, 2025
Amanda Catalfio, PhD- University of Michigan Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal functionPostdoctoral Fellowship- $75,000 ...
Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A Haploinsufficiency
December 5, 2025
Mahima Dewani, PhD- Brigham and Women’s Hospital, Harvard Medical School Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A HaploinsufficiencyPostdoctoral Fellowship- $75,000 over 1 year ...
Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ Mice
December 5, 2025
Megumi Mori, PhD- Gladstone Institutes and University of California San Francisco Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ MicePostdoctoral Fellowship- $75,000 over 1 ...
Prospective Study of Accelerated Aging in Adults with Dravet Syndrome
December 5, 2025
Danielle Andrade, MD, MSc, FRCPC, CSCN- University of Toronto Prospective Study of Accelerated Aging in Adults with Dravet SyndromeTransformational Science Grant- $499,455 over 3 years ...
A Year of Gratitude and Progress for the Dravet Community
November 28, 2025
For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...
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