DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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Cell-type resolved molecular and functional pathology in Scn1a mutant mouse cerebellum
December 5, 2025
Alex Nord, PhD- University of California DavisDiasynou Fioravante, PhD- University of California Davis Cell-type resolved molecular and functional pathology in Scn1a mutant mouse cerebellumResearch Grant- ...
Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal Approaches
December 5, 2025
Ulrike Hedrich-Klimosch, PhD- University of Tuebingen Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal ApproachesResearch Grant- $248,901 over 2 years Summary from the ...
A Year of Gratitude and Progress for the Dravet Community
November 28, 2025
For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...
2025 Recipients of the Sofie’s Journey Scholarship for Epilepsy Awareness Day at Disneyland
November 21, 2025
What a dream come true! Sofie’s Journey awarded our family a scholarship to attend Epilepsy Awareness Day at Disneyland (EADDL) this year. We have talked ...
3rd Annual Pedal for a Purpose Raises Awareness and Hope for Dravet Syndrome
November 14, 2025
What began as a simple 109-mile recreational bike ride through the scenic Black Hills has transformed into a mission that’s touching lives around the world ...
Why We’re Asking for Your Support This Year—Because Families Can’t Wait
November 7, 2025
When Dravet Syndrome Foundation (DSF) began in 2009, it started with four parents and a bold vision: advance understanding of a little-known disease, create treatments ...
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