DSF & Dravet Syndrome News
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Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal Approaches
December 5, 2025
Ulrike Hedrich-Klimosch, PhD- University of Tuebingen Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal ApproachesResearch Grant- $248,901 over 2 years Summary from the ...
Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal function
December 5, 2025
Amanda Catalfio, PhD- University of Michigan Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal functionPostdoctoral Fellowship- $75,000 ...
Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A Haploinsufficiency
December 5, 2025
Mahima Dewani, PhD- Brigham and Women’s Hospital, Harvard Medical School Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A HaploinsufficiencyPostdoctoral Fellowship- $75,000 over 1 year ...
Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ Mice
December 5, 2025
Megumi Mori, PhD- Gladstone Institutes and University of California San Francisco Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ MicePostdoctoral Fellowship- $75,000 over 1 ...
A Year of Gratitude and Progress for the Dravet Community
November 28, 2025
For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...
2025 Recipients of the Sofie’s Journey Scholarship for Epilepsy Awareness Day at Disneyland
November 21, 2025
What a dream come true! Sofie’s Journey awarded our family a scholarship to attend Epilepsy Awareness Day at Disneyland (EADDL) this year. We have talked ...
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