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Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal Approaches

Ulrike Hedrich-Klimosch, PhD- University of Tuebingen Mapping Early Postnatal Brain Development in Dravet Syndrome Using Multimodal ApproachesResearch Grant- $248,901 over 2 years Summary from the ...

Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal function

Amanda Catalfio, PhD- University of Michigan Investigating effects of the pathogenic developmental and epileptic encephalopathy patient variant, SCN1B-p.R98C, on cognition and hippocampal functionPostdoctoral Fellowship- $75,000 ...

Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A Haploinsufficiency

Mahima Dewani, PhD- Brigham and Women’s Hospital, Harvard Medical School Rewriting the Brain’s Code: Nose-to-Brain Gene Therapy for SCN1A HaploinsufficiencyPostdoctoral Fellowship- $75,000 over 1 year ...

Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ Mice

Megumi Mori, PhD- Gladstone Institutes and University of California San Francisco Mechanisms of Seizure Prevention by Tau Reduction in Scn1aRX/+ MicePostdoctoral Fellowship- $75,000 over 1 ...

A Year of Gratitude and Progress for the Dravet Community

For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...

2025 Recipients of the Sofie’s Journey Scholarship for Epilepsy Awareness Day at Disneyland

What a dream come true! Sofie’s Journey awarded our family a scholarship to attend Epilepsy Awareness Day at Disneyland (EADDL) this year. We have talked ...
Berkley Dravet story

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