Celebrating 15 Years!

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF:

  • 15 years of funding groundbreaking research. 
  • 15 years of connecting and supporting families.
  • 15 years of raising awareness of Dravet syndrome.
  • 15 years of collaborative partnerships. 
  • 15 years of impact.

Let’s delve deeper on the first bullet point: 15 years of funding groundbreaking research.

Rare diseases, such as Dravet syndrome, often lack effective treatments or cures due to their limited prevalence and research focus. We believe that funding innovative approaches and pushing the boundaries of scientific knowledge can lead to breakthroughs and advancements.  By providing seed grants, we have empowered researchers to collect data on innovative hypotheses, giving them the chance to seek larger governmental funding. Additionally, we have attracted new researchers to the Dravet syndrome field, many of whom subsequently made it their primary research focus.   

We have also emphasized networking and collaboration. Our annual Research Roundtable serves as a platform to showcase the latest research, fostering collaboration among researchers, clinicians, industry partners, and our patient community. This encourages a more comprehensive and cooperative approach to addressing Dravet syndrome.

The graphic presented below illustrates the significant impact our work has had on the Dravet syndrome research landscape since our establishment in 2009. Through strategic resource allocation, we have maximized the effectiveness of our investments, resulting in a substantial impact.

We are grateful for the steadfast support our community has offered us every step of the way. None of this would be possible without you!

Community. Research. Progress.

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