DSF Staff

Amanda Nehme-Clicerio brings a blend of professional marketing expertise and lived Dravet caregiver experience to her role as Marketing & Digital Communications Manager at the Dravet Syndrome Foundation (DSF). Based in New Jersey, she has spent nearly a decade in B2B marketing roles, building digital ecosystems, shaping brand stories, and translating complex information into clear, […]

Sarah joined the DSF staff in 2025 but has been involved with the organization as a supporter since around 2015 after she learned that her daughter’s best friend had an SCN1A related seizure disorder.  She has her undergraduate degree in Theatre and her Masters of Science in elementary and special education. Sarah lives in New

Jim is married with two daughters and three grandchildren. His grandaughter began having seizures at 9 months old and was eventually diagnosed with an SCN1A-related disorder. After retiring from his property management business several years ago, Jim welcomed the opportunity to join the DSF team, after witnessing first hand the level of commitment this organization

Gloria was born in Houston, Texas and grew up in South Houston. She graduated from Pasadena High School and while working with the public as a civil servant, she earned a Bachelor of Science degree in Psychology from the University of Houston – Clear Lake. In 2023, she received a Master of Science in Health

Cheyenne Wolf brings a deep commitment to nonprofit development and donor engagement to her role as Development Coordinator at Dravet Syndrome Foundation (DSF). A Central New Jersey native, she has dedicated her career to advancing mission-driven organizations through strategic fundraising and relationship-building. Cheyenne’s academic journey began with a merit-based NJ STARS scholarship, allowing her to

Rich was born, raised, and currently resides in Enumclaw, WA. He has spent most of his career working in a local manufacturing plant programming welding robots and as an IT Analyst. He is married and has two boys, Owen and Zachary. Rich now spends most of his time troubleshooting and repairing off-road vehicles and buggies.

As the Family Network Coordinator, Austin oversees the Family Ambassador and Brand Ambassador Programs, acts as a moderator for online support groups, organizes gatherings both digital and live, acts as liaison between families and DSF, and other duties to further the mission of DSF. Originally from Northwest Washington, Austin lives in Boise, Idaho with her

Shannon lives in Smyrna, GA with her husband Blaine and their three children. Their oldest child, Alaina, had her first seizure at four months old and was diagnosed with Dravet syndrome in 2009 at age four. Shannon is originally from Pickerington, Ohio, and graduated from Florida State University in 1997 with a degree in Management

Meredith has been an active part of the Dravet community since her daughter, Eden, was diagnosed with Dravet syndrome in 2016. The DSF has directly impacted her life by advocating for approval of medications that were removed from the marketplace and connecting her with other families who are fighting Dravet syndrome. Because of these efforts,

After spending the last 20 years in the insurance industry, Karen signed on in early 2023 as an Administrative Assistant for DSF.  Karen has been a volunteer Parent Ambassador for the West Region of the DSF Family Network since 2015 and helped to bring the Day of Dravet events to San Francisco, Seattle, and Los